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WELCOME

Welcome to PNH Support! We are a group of PNH patients in England, Wales and Northern Ireland who have formed a community in order to support each other and speak with one voice. We also wanted a place where patients and their families could find relevant and reliable information about this rare disease all in one place.


OUR VISION

Excellence in PNH patient support.


OUR MISSION

To reduce fear and isolation by education, support and collaboration.

LONDON PATIENT MEETING

Date: 25 NOVEMBER 2017 - 2PM TO 5PM

Venue: Siobhan Davies Dance Studio, 85 St. George’s Rd, London, SE1 6ER

RSVP by 20/11/17: contact@pnhuk.org

Refreshments provided. Family members/carers welcome.

 

 

 

 

 

 
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