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Terms and Conditions (as at 28/05/2015)

Please read the following terms and conditions carefully as they govern the use of this website.

All material contained within the PNH Support website (www.pnhuk.org) is covered by a disclaimer and protected by copyright laws. Access to this website (www.pnhuk.org) is subject to the following conditions:


The "PNH Support” logo is the property of PNH Support and cannot be used without our permission. All other trademarks and logos used in this website are the trademarks or logos of their respective owners.
Links to other websites

This website contains links to other websites that are operated by third parties. PNH Support does not accept any liability over the content of these third party sites. The existence of these links do not constitute an endorsement of such websites, and your linking to these sites is at your own risk.
Content Accuracy

Whilst all reasonable efforts have been made to ensure the accuracy of content, no responsibility can be taken for any error or omission. No advice or information, whether oral or written, obtained by you from the forum on www.pnhuk.org shall create any warranty not expressly made in these terms of service or imposed by law. All content of this website is provided for information purposes only, and is not intended to be a substitute for professional medical advice relating to a specific medical condition or question.

All photographs on the site are either the copyright of PNH Support or its members, used with their permission. No photographs on the website may be copied or published without permission from the copyright holder for which you will need to contact PNH Support.

Most elements of www.pnhuk.org may be viewed by anyone, however to access some services, e.g. the forum, you will need to register as a member of the website. When you register with us you are stating that you are over 18 years of age. You agree that any information you provide to us about yourself upon registration or at any other time will be true, accurate and complete, and that you will ensure that this information is kept accurate and up to date at all times.

When you register to use www.pnhuk.org you will be asked to create a password. You must keep this password confidential and must not disclose it to or share it with anyone. You will be deemed responsible for all activities that occur under your password. If you know or suspect that someone else knows your password, you should notify us immediately.
Your use of www.pnhuk.org

PNH Support does not necessarily endorse the views expressed by users, for example on the forum. You alone are responsible for the content of your messages and your use of www.pnhukorg and the consequences of any such messages. By using www.pnhul.org you agree to comply with the following guidelines:

[a] www.pnhuk.org is to be used for your personal use only and use of www.pnhuk.org for commercial purposes or to obtain financial gain are strictly prohibited without PNH Support’s prior written consent.
[b] www.pnhuk.org may not be used to send chain letters, junk mail, "spam”, solicitations or bulk communications of any kind unless the recipient has given specific permissions to be included in such a list.
[c] You may not post to www.pnhuk.org any message or material that is unlawful, harassing, defamatory, abusive, threatening, harmful, vulgar, obscene, profane, threatening, racially or sexually or otherwise discriminatory, offensive, inaccurate, in breach of confidence or a third party’s intellectual property rights or which otherwise includes objectionable material of any kind or nature, that encourages or engages in conduct that could constitute a criminal offence, give rise to civil liability or otherwise violate any applicable local, national or international law or regulation or which has a disruptive influence on the normal flow of the forum. You must not impersonate any other person or entity, whether actual or fictitious. If you feel that any of the terms and conditions have been broken by users, please email contact@pnhuk.org. There are Rules of Use which govern activity on the forum, and you must adhere to these at all times. These Terms and Conditions underwrite the Rules of Use.

[d] You must not use www.pnhuk.org in a way that might reasonably be expected to cause the same to be interrupted, damaged, rendered less efficient or which could in any way damage the operation of another’s computer.
[e] PNH Support reserves the right in its absolute discretion at any time to edit, alter, delete or move any material whatsoever posted to, appearing on, or distributed by www.pnhuk.org and you. We also reserve the right, at our sole discretion, to terminate a user's access to the forum.

Intellectual Property

[a] PNH Support owns the copyright of, and other intellectual property rights, in www.pnhuk.org and its contents. "Rights” means copyright, database rights, trade marks, design rights and other intellectual and proprietary rights of whatever nature, anywhere in the world. You acknowledge that (i) PNH Support is protected by these Rights; (ii) these Rights are valid and protected in all media and technologies existing now or later developed; and (iii) except as explicitly provided otherwise, these Terms and Conditions and applicable copyright, trademark and other laws govern your use of such Rights.
[b] You may view, print, download or store extracts from www.pnhuk.org for your personal, non-commercial reference without alteration, addition or deletion. You may not otherwise copy, replicate, distribute, publish, commercially exploit or otherwise transfer any www.pnhuk.org material or content without prior consent.
[c] By submitting content, which shall include your Username to any public area of www.pnhuk.org, including the forum you grant PNH Support royalty-free, perpetual, non-exclusive license to use, reproduce, modify, adapt, publish and translate such content for the purposes of the online community to supply information, promote services and offer interaction and communication between users of the community.

Limitation of liability

PNH Support does not guarantee that access to this website will be uninterrupted; that this website will be free from viruses or that this website cannot be tampered with by third parties. This website and the information are provided on an 'as is' basis, with no warranties of any kind whatsoever, either express or implied, including, but not limited to, any warranties or any implied warranties of merchantability or fitness for a particular purpose. Use of this website and the information is entirely at the user's sole risk. In no event will PNH Support be liable for any damages whatsoever arising out of or related to this website. Your sole and exclusive remedy for dissatisfaction with this website and/or information is to stop using the site and the information.

Modification of the Terms and Conditions

PNH Support may modify the terms of this agreement on this site. You agree to periodically review this agreement to be aware of any such revisions. Should the revision be unacceptable to you, you agree to stop accessing this site. Your continued use of this website following such notification of any such revision(s) shall be deemed as acceptance of and agreement to abide by all such revisions.


These Terms and Conditions shall be governed by and construed in accordance with the laws of England and Wales. Disputes arising here from shall be exclusively subject to the jurisdiction of the courts of England and Wales.

If any of these Terms and Conditions should be determined to be illegal, invalid or otherwise unenforceable by reason of the laws of any state or country in which these Terms and Conditions are intended to be effective, it shall be severed and deleted from this clause. All other Terms and Conditions shall remain in full force and continue to be binding and enforceable.

PNH Support reserves the right to change these any of its terms and conditions at any time by posting changes online.

Forum Terms and Conditions of Use

Please take a moment to review the Terms and Conditions detailed below. Once you start using PNH Support’s Forum you are deemed to have accepted and agreed to be bound by these Terms and Conditions. PNH Support reserves the right to prohibit you from using this site if it believes you have infringed these rules.

General Terms of Use

By registering you agree not to participate in mischievous or malicious behaviour which causes damage or may cause damage to PNH Support or to any other individual or organisation.

Messages must not be obscene, vulgar, defamatory or libellous, sexually orientated, hateful, threatening or otherwise violate any laws or good morals and practice.

Messages must not contain advertisements or references to products or services. This includes fundraising or awareness events which PNH Support does not consider to benefit our charity.

Messages which appear to impersonate someone else are not permitted.
Repeated posting of the same or similar messages (referred to as spam) will not be permitted.
You agree not to post any copyrighted material unless the copyright is owned by you or by this bulletin board.
Any user who feels that a posted message is objectionable is encouraged to contact PNH Support immediately by email.

By registering you acknowledge that PNH Support is not under any obligation to monitor or review the Forum and you agree that you are entirely responsible for all content that you make available on the board.

All messages posted on the PNH Support website remain the property of PNH Support and we reserve the right to edit or remove posts without any prior contact with the author. The deletion of messages is at the discretion of the PNH Support Website Administrator. Anyone not adhering to these Terms of Use may be banned from participating in the PNH Support Forum without prior notice.

Privacy and Data Protection

PNH Support will not share information provided through the registration process to any third party. Except in the event of any complaint about inappropriate use or posts or in case of legal action rising from any message posted by you, PNH Support reserves the right to reveal your identity and other information we may know about you to comply with due process.


This agreement shall be governed in accordance with English law.
3.2: Please check the rules from time to time. PNH Support reserves the right to modify these without notice, and your use of the PNH Support Forum signifies your personal agreement.


This is a public forum and we encourage users to be welcoming and supportive - but remember your posts can be seen by thousands of people every day.

Usernames and Content

Choose your username with care. Imagine the name appearing alongside your personal information. If you think you may be identified away from the board or by individuals within your family because of it, choose a username that is more random and less personal.

Posting your personal details (such as phone number, address) or arranging to meet someone in person alone can be unsafe. Please keep your personal safety in mind. Any postings of this kind will be removed if they are noted.

Any individual or organisation making use of information from this site does so at their own risk and PNH Support takes no responsibility for any actions arising from this.

All messages posted on the Forum are the views of individuals and do not represent the views, policy or advice of PNH Support. We cannot guarantee that the information posted by individuals is accurate and it is intended for discussion and support only. Although PNH Support will try to step in to correct any obvious inaccuracies you should not follow any medical or treatment advice without firstly discussing it with your medical practitioner.

Privacy statement (as at 15/06/2015)


This statement only applies to the PNH Support web site at www.pnhuk.org.

Data Protection

PNH Support is exempt from registration with the Office of the Information Commissioner for the purposes for which personal information is collected on this web site.

Personally identifiable information

PNH Support will only collect personal information when you specifically and knowingly provide it to us. Examples of personal information are your name, address, email address or telephone number.
Where stated we may use the personal information you provide to contact you in the future about PNH Support’s work. If you do not want this to happen please tick the appropriate box where provided.
Personal information given at the time of registration will be used to contact you regarding any queries with your account. By registering with us you agree that this is acceptable. We will not share your personal information with any third parties.

Non-personally identifiable information

Aggregate or summary information may be collected automatically by our system e.g. number of visitors to the site. In order to do this we may need to send cookies to your PC. This information is used to monitor use of the website and will not contain information that can identify you as an individual.

Third party sites

This website contains links to other websites. Please be notified that PNH Support cannot be held responsible for the privacy practices of other web sites. We encourage all visitors to be aware and read the privacy statements of each and every web site that collects personally identifiable information.

Privacy statement changes

PNH Support may change this privacy statement at any time. You are advised to read this statement each and every time so that you are satisfied with the privacy conditions under which you provide PNH Support with your personal information.

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