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July 2020

AAMDSIF Patient and Family Online Conference – 17 to 19 July 2020

July 17 @ 5:00 PM - July 19 @ 8:30 PM BST

In light of the precautions being taken to prevent the spread of COVID-19, the AAMDSIF are taking their National Patient & Family Conference to a virtual format! The experts below will help you understand your bone marrow failure disease. You will be able to submit your questions for the speaker for every session!The Conference will be completely online. Your confirmation email will provide information on how to access the conference. Please be sure to follow the instructions when you register…

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PNH Support & Connect – Saturday 25 July 2020, 10.30am to 11.30am

July 25 @ 10:30 AM - 11:30 AM BST

Join us for an informal chat with other patients and family members. No presentations, speakers or medical advice provided. Email contact@pnhuk.org for the joining details.

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September 2020

East Anglia Patient and Family Meeting – Saturday 19 September – 10.30am to 12.30pm

September 19 @ 10:30 AM - 12:30 PM BST
Bury Lane Farm Shop cafe, near Royston on the A10 (SG8 6DF)

To be held at Bury Lane Farm Shop cafe, near Royston on the A10 (SG8 6DF) but if lockdown is still in effect this meeting will be virtual via Zoom. Drop in. Hot drinks and delicious cake in a lovely environment. And we are usually the noisiest table in the cafe!

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