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December 2020

PNH Support and Connect Pre- Xmas Event

December 19, 2020 @ 10:00 AM - 12:00 PM GMT

All PNH patients and family members are welcome to join us for an informal chat. BYO coffee and cake (or Christmas mince pie!). Email contact@pnhuk.org for details.

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January 2021

Launch of the EPF Patient Guide “Let’s Talk About Vaccination” – 14 January 2021 from 14h-16h.

January 14 @ 2:00 PM - 4:00 PM GMT

Since 2018, the European Patients’ Forum has actively engaged in advocacy on the importance of vaccination for patients with chronic conditions – people with specific vulnerabilities and needs concerning vaccination, but who do not always find enough information on vaccination targeted specifically at patients.   Building on our previous work we have developed a guide to vaccination for patients and patient advocates. This guide, titled “Let’s Talk About Vaccination”, is the next step in filling the awareness and information gap…

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PNH Support and Connect – Saturday 23 January 2021 via Zoom

January 23 @ 10:30 AM - 12:30 PM GMT

Join PNH patients and family members for an informal chat. BYO refreshments. All welcome. Instructions on using Zoom: https://www.ageuk.org.uk/.../activi.../zoom-instructions.pdf Please email contact@pnhuk.org for Zoom details

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