PNH Support

PNH Support and Connect December Meeting via Zoom - Saturday 11 December
2021-12-11 10:30 - 12:00 UTC
Join us for a pre- holiday season patient and family Zoom meeting from 10.30am to 12pm. We will have guest speakers including PNH consultants to speak about latest updates and research on PNH. BYO refreshments!

Instructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…

PNH Support East Anglia Patient and Family Online meeting - Saturday 4 December 2021 - 10.30am to 12pm
2021-12-04 10:30 - 12:00
East Anglia Patient and Family Zoom meeting
Date and Time: 10.30 – 12.00 Saturday 4th December 2021
Location: Zoom
Meeting Details: Join PNH patients and family members online for an informal chat. BYO refreshments.
All welcome!

Instructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…

Email contact@pnhuk.org for the Zoom details.

PNH Support and Connect October Meeting via Zoom - Saturday 30 October 2021
2021-10-30 10:30 - 12:00
Join us for an informal chat with patients and family members from 10.30 to 12pm on Zoom. Please email contact@pnhuk.org for Zoom details.

2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO)
2021-10-11 18:00 - 19:00
2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO) by Dr Austin Kulasekararaj on Monday 11 October 2021 from 6pm to 7pm (GMT or 1pm to 2pm EDT). Please resgister here to attend.

This webinar focuses on the latest in research presented at the 2021 European Hematology Association(EHA) and American Society of Clinical Oncology (ASCO) annual meetings. Dr. Austin Kulasekararaj has selected a number of abstracts (research summaries) and provides a high-level assessment of new and ongoing research into treating aplastic anemia and/or PNH. There will be a Q & A session at the end of the presentation
https://www.aamds.org/…/2021-aplastic-anemia-and-pnh…

PNH Support East Anglia Patient and Family Face-to- face Meeting - 4 September 2021 - 10.30am to 12pm
2021-09-04 10:30 - 12:00
East Anglia Patient and Family Coffee and Cake meeting
Date and Time: 10.30 – 12.00 Saturday 4th September 2021
Location: Bury Lane Farm Shop (outside seating)
Details: Join PNH patients and family members for an informal chat over coffee and cake. We will be sitting in socially distanced outdoor seating that is not under cover so please bring your own umbrellas, blankets, sun cream as appropriate!

Any questions please email contact@pnhuk.org.

PNH Support and Connect Meeting - Saturday 21 August 2021 - 10.30pm to 12pm
2021-08-21 10:30 - 12:00
Join us for an online (via Zoom) catch up with other PNH patients and family members. We will also present the findings from the latest patient and carer survey.

Email us on contact@pnhuk.org for the Zoom details.

Test Event
2021-04-12 08:00 - 17:00
loerem
