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X-WR-CALNAME:PNH Support
X-ORIGINAL-URL:https://pnhuk.org
X-WR-CALDESC:Events for PNH Support
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DTSTART:20200101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220216T173000
DTEND;TZID=UTC:20220216T183000
DTSTAMP:20260802T184721
CREATED:20220213T151606Z
LAST-MODIFIED:20220213T151606Z
UID:7072-1645032600-1645036200@pnhuk.org
SUMMARY:Webinar on Living with aplastic anaemia or PNH - with CNS\, Louise Arnold - 16 February 2022- 5.30pm
DESCRIPTION:This webinar hosted by the Aplastic Anaemia Trust (AAT) is all about dealing with any day to day difficulties people with aplastic anaemia might be struggling with. Whether you’re dealing with a sore mouth\, managing medication side effects or dealing with infections\, or something else entirely – bring your gripes and concerns to get tips on how to feel better. \nThis is your chance to raise your bugbears with a clinical nurse specialist\, and connect with a friendly online room full of people who understand what you’re going through. \nThis session will be led by Louise Arnold\, a Trainee Advanced Clinical Practitioner (Nurse) from the Department of Haematology at St James’ Institute of Oncology. \nTo register click here. \nIf you have a question for Louise\, or a specific topic you’d like us to talk about\, we would appreciate it if you could send it to the AAT in advance\, either at the time of booking or by emailing us at support@theaat.org.uk.
URL:https://pnhuk.org/event/webinar-on-living-with-aplastic-anaemia-or-pnh-with-cns-louise-arnold-16-february-2022-5-30pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/directory-1699948.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211211T103000
DTEND;TZID=UTC:20211211T120000
DTSTAMP:20260802T184721
CREATED:20211003T162654Z
LAST-MODIFIED:20211124T095823Z
UID:7040-1639218600-1639224000@pnhuk.org
SUMMARY:PNH Support and Connect December Meeting via  Zoom - Saturday 11 December
DESCRIPTION:Join us for a pre- holiday season patient and family Zoom meeting from 10.30am to 12pm. We will have guest speakers including PNH consultants to speak about latest updates and research on PNH. BYO refreshments! \n  \nInstructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…
URL:https://pnhuk.org/event/pnh-support-and-connect-december-meeting-via-zoom-saturday-11-december/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/hot-chocolate-1782623_1920.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20211204T103000
DTEND;TZID=UTC:20211204T120000
DTSTAMP:20260802T184721
CREATED:20210806T102637Z
LAST-MODIFIED:20211124T095839Z
UID:6909-1638613800-1638619200@pnhuk.org
SUMMARY:PNH Support East Anglia Patient and Family Online meeting - Saturday 4 December 2021 - 10.30am to 12pm
DESCRIPTION:East Anglia Patient and Family Zoom meeting\nDate and Time: 10.30 – 12.00 Saturday 4th December 2021\nLocation: Zoom\nMeeting Details: Join PNH patients and family members online for an informal chat. BYO refreshments.\nAll welcome! \n  \nInstructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the… \n  \nEmail contact@pnhuk.org for the Zoom details.
URL:https://pnhuk.org/event/pnh-support-east-anglia-patient-and-family-zoom-meeting-saturday-4-december-2021-10-30am-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/hot-chocolate-1782623_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211030T103000
DTEND;TZID=UTC:20211030T120000
DTSTAMP:20260802T184721
CREATED:20211003T162440Z
LAST-MODIFIED:20211003T162757Z
UID:7038-1635589800-1635595200@pnhuk.org
SUMMARY:PNH Support and Connect October Meeting via Zoom - Saturday 30 October 2021
DESCRIPTION:Join us for an informal chat with patients and family members from 10.30 to 12pm on Zoom. Please email contact@pnhuk.org for Zoom details.
URL:https://pnhuk.org/event/pnh-support-and-connect-october-zoom-meeting-saturday-30-october-2021/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/england-1500891_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T180000
DTEND;TZID=UTC:20211011T190000
DTSTAMP:20260802T184721
CREATED:20211008T152116Z
LAST-MODIFIED:20211008T152116Z
UID:7044-1633975200-1633978800@pnhuk.org
SUMMARY:2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO)
DESCRIPTION:2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO) by Dr Austin Kulasekararaj on Monday 11 October 2021 from 6pm to 7pm (GMT or 1pm to 2pm EDT). Please resgister here to attend.\n\nThis webinar focuses on the latest in research presented at the 2021 European Hematology Association(EHA) and American Society of Clinical Oncology (ASCO) annual meetings. Dr. Austin Kulasekararaj has selected a number of abstracts (research summaries) and provides a high-level assessment of new and ongoing research into treating aplastic anemia and/or PNH. There will be a Q & A session at the end of the presentation\nhttps://www.aamds.org/…/2021-aplastic-anemia-and-pnh…
URL:https://pnhuk.org/event/2021-aplastic-anemia-and-pnh-research-update-from-european-haematology-association-congress-2021-eha-and-american-society-of-clinical-oncology-asco/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/resources-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210904T103000
DTEND;TZID=UTC:20210904T120000
DTSTAMP:20260802T184721
CREATED:20210806T102204Z
LAST-MODIFIED:20210806T102821Z
UID:6907-1630751400-1630756800@pnhuk.org
SUMMARY:PNH Support East Anglia Patient and Family Face-to- face Meeting - 4 September 2021 - 10.30am to 12pm
DESCRIPTION:East Anglia Patient and Family Coffee and Cake meeting\nDate and Time: 10.30 – 12.00 Saturday 4th September 2021\nLocation: Bury Lane Farm Shop (outside seating)\nDetails: Join PNH patients and family members for an informal chat over coffee and cake. We will be sitting in socially distanced outdoor seating that is not under cover so please bring your own umbrellas\, blankets\, sun cream as appropriate! \n  \nAny questions please email contact@pnhuk.org.
URL:https://pnhuk.org/event/pnh-support-east-anglia-patient-and-family-meeting-4-september-2021-10-30am-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/cup-2315563_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210821T103000
DTEND;TZID=UTC:20210821T120000
DTSTAMP:20260802T184721
CREATED:20210806T100956Z
LAST-MODIFIED:20210806T100956Z
UID:6904-1629541800-1629547200@pnhuk.org
SUMMARY:PNH Support and Connect Meeting - Saturday 21 August 2021 - 10.30pm to 12pm
DESCRIPTION:Join us for an online (via Zoom) catch up with other PNH patients and family members. We will also present the findings from the latest patient and carer survey. \n  \nEmail us on contact@pnhuk.org for the Zoom details.
URL:https://pnhuk.org/event/pnh-support-and-connect-meeting-saturday-21-august-2021-10-30pm-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/afternoon-3157393_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210412T080000
DTEND;TZID=UTC:20210412T170000
DTSTAMP:20260802T184721
CREATED:20210411T234330Z
LAST-MODIFIED:20210411T234330Z
UID:89-1618214400-1618246800@pnhuk.org
SUMMARY:Test Event
DESCRIPTION:loerem
URL:https://pnhuk.org/event/test-event/
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