PNH Support

Looking after your mental wellbeing - join the AAT's Wellbeing Wednesdays!
2022-02-23 05:00 - 18:00 UTC
Maggie’s lead psychologist Lesley Howells joins the Aplastic Anaemia Trust (AAT) and their patient community members (including those with PNH) every week, for an interactive and friendly session via Zoom with the focus on mental wellbeing at this very challenging time.
Wednesdays from 5pm to 6pm
Struggling to cope with the uncertainty? It’s all over-whelming? Self-isolation is bringing back memories of gruelling treatment? You’d like to learn about simple ways to stay mentally and emotionally well or just want to chat with a specialist about your situation? Then this friendly weeky chat is for you.
There’s no commitment to join every week, and if you’ve never joined us before do come to whatever session works for you – we would love to meet you.
Please register here
Please feel free to drop the AAT a line in advance if you have a specific question for Lesley or a concern that’s been playing on your mind – support@theaat.org.uk
The AAT is hugely grateful to Lesley and the wonderful Maggie’s Centres for their help at this tough time.

Webinar on Living with aplastic anaemia or PNH - with CNS, Louise Arnold - 16 February 2022- 5.30pm
2022-02-16 17:30 - 18:30
This webinar hosted by the Aplastic Anaemia Trust (AAT) is all about dealing with any day to day difficulties people with aplastic anaemia might be struggling with. Whether you’re dealing with a sore mouth, managing medication side effects or dealing with infections, or something else entirely – bring your gripes and concerns to get tips on how to feel better.
This is your chance to raise your bugbears with a clinical nurse specialist, and connect with a friendly online room full of people who understand what you’re going through.
This session will be led by Louise Arnold, a Trainee Advanced Clinical Practitioner (Nurse) from the Department of Haematology at St James’ Institute of Oncology.
To register click here.
If you have a question for Louise, or a specific topic you’d like us to talk about, we would appreciate it if you could send it to the AAT in advance, either at the time of booking or by emailing us at support@theaat.org.uk.

PNH Support and Connect December Meeting via Zoom - Saturday 11 December
2021-12-11 10:30 - 12:00
Join us for a pre- holiday season patient and family Zoom meeting from 10.30am to 12pm. We will have guest speakers including PNH consultants to speak about latest updates and research on PNH. BYO refreshments!

Instructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…

PNH Support East Anglia Patient and Family Online meeting - Saturday 4 December 2021 - 10.30am to 12pm
2021-12-04 10:30 - 12:00
East Anglia Patient and Family Zoom meeting
Date and Time: 10.30 – 12.00 Saturday 4th December 2021
Location: Zoom
Meeting Details: Join PNH patients and family members online for an informal chat. BYO refreshments.
All welcome!

Instructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…

Email contact@pnhuk.org for the Zoom details.

PNH Support and Connect October Meeting via Zoom - Saturday 30 October 2021
2021-10-30 10:30 - 12:00
Join us for an informal chat with patients and family members from 10.30 to 12pm on Zoom. Please email contact@pnhuk.org for Zoom details.

2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO)
2021-10-11 18:00 - 19:00
2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO) by Dr Austin Kulasekararaj on Monday 11 October 2021 from 6pm to 7pm (GMT or 1pm to 2pm EDT). Please resgister here to attend.

This webinar focuses on the latest in research presented at the 2021 European Hematology Association(EHA) and American Society of Clinical Oncology (ASCO) annual meetings. Dr. Austin Kulasekararaj has selected a number of abstracts (research summaries) and provides a high-level assessment of new and ongoing research into treating aplastic anemia and/or PNH. There will be a Q & A session at the end of the presentation
https://www.aamds.org/…/2021-aplastic-anemia-and-pnh…

PNH Support East Anglia Patient and Family Face-to- face Meeting - 4 September 2021 - 10.30am to 12pm
2021-09-04 10:30 - 12:00
East Anglia Patient and Family Coffee and Cake meeting
Date and Time: 10.30 – 12.00 Saturday 4th September 2021
Location: Bury Lane Farm Shop (outside seating)
Details: Join PNH patients and family members for an informal chat over coffee and cake. We will be sitting in socially distanced outdoor seating that is not under cover so please bring your own umbrellas, blankets, sun cream as appropriate!

Any questions please email contact@pnhuk.org.

PNH Support and Connect Meeting - Saturday 21 August 2021 - 10.30pm to 12pm
2021-08-21 10:30 - 12:00
Join us for an online (via Zoom) catch up with other PNH patients and family members. We will also present the findings from the latest patient and carer survey.

Email us on contact@pnhuk.org for the Zoom details.

Test Event
2021-04-12 08:00 - 17:00
loerem
