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X-WR-CALNAME:PNH Support
X-ORIGINAL-URL:https://pnhuk.org
X-WR-CALDESC:Events for PNH Support
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X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20220618T100000
DTEND;TZID=UTC:20220618T123000
DTSTAMP:20260729T121233
CREATED:20220419T121117Z
LAST-MODIFIED:20220419T121745Z
UID:7152-1655546400-1655555400@pnhuk.org
SUMMARY:PNH Support Members' Annual General Meeting - 18 June 2022 - 10am to 12.30pm
DESCRIPTION:Members of PNH Support are welcome to join our AGM to be held virtually on Zoom on 18 June 2022 and vote on the annual report and accounts and any other proposed resolutions. Members will also hear about what activities we have undertaken in the past year ending 31 March 2022 and contribute their thoughts on our plans for the coming year. \nIf you are a PNH patient or family member living in England\, Wales or Northern Ireland and would like to become a member of PNH Support (membership is free) please complete this form. \nPlease contact us on contact@pnhuk.org with questions or for the Zoom details (if you are already a member).
URL:https://pnhuk.org/event/pnh-support-members-annual-general-meeting-18-june-2022-10am-to-12-30pm/
ATTACH;FMTTYPE=image/png:https://pnhuk.org/wp-content/uploads/2022/04/people-g16b024459_1280.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220521T103000
DTEND;TZID=UTC:20220521T123000
DTSTAMP:20260729T121233
CREATED:20220419T101420Z
LAST-MODIFIED:20220419T120217Z
UID:7147-1653129000-1653136200@pnhuk.org
SUMMARY:East Anglia Patient and Family Coffee and Cake meeting
DESCRIPTION:An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome.\nWe have booked outside seating\, so fingers crossed that the weather will be good! Please let us know if you plan to attend so that we can confirm numbers to the café.\nNote that you will need to pay for your own refreshments.\n\n\nLocation: Bury Lane Farm Shop Café\, A10 By Pass\, Melbourn\, Royston\, Herts\, SG8 6DF https://burylanefarmshop.co.uk/contact \n\n\nFor confirmation of attendance or any questions please email: contact@pnhuk.org
URL:https://pnhuk.org/event/east-anglia-patient-and-family-coffee-and-cake-meeting/
LOCATION:Bury Lane Farm Shop Café\, A10 By Pass\, Melbourn\, Royston\, Herts\, SG8 6DF\, SG8 6DF\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2022/04/coffee-g5c9910f10_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220420T173000
DTEND;TZID=UTC:20220420T183000
DTSTAMP:20260729T121233
CREATED:20220321T153135Z
LAST-MODIFIED:20220321T171641Z
UID:7121-1650475800-1650479400@pnhuk.org
SUMMARY:Navigating the new 'normal' with no COVID restrictions -  20 April 2022
DESCRIPTION:How do you feel about returning to ‘normal’ without COVID restrictions?\n\nWe are aware that this is a daunting prospect for many of us who have spent many months shielding and who may still be.\nJoin us on Wednesday 20 April 2022\, 5.30pm to 6.30pm via Zoom when Philip Alexander\, the Lead Psychotherapist from Haemato-oncology at Kings College Hospital\, London will lead a discussion on this topic.\n\nPlease register to attend by emailing contact@pnhuk.org.\n\nPlease also send any questions you would like answered ahead of the session to the same email address.
URL:https://pnhuk.org/event/how-do-you-feel-about-covid-restrictions-lifting-20-april-2022/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2022/03/sketch-3042584_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220312T103000
DTEND;TZID=UTC:20220312T120000
DTSTAMP:20260729T121233
CREATED:20220202T183843Z
LAST-MODIFIED:20220202T184028Z
UID:7065-1647081000-1647086400@pnhuk.org
SUMMARY:East Anglia PNH Patient and Family Zoom meeting - 12 March 2022
DESCRIPTION:PNH patients and family members are welcome to join the East Anglia Patient and Family Zoom meeting. \nDate and Time: 10.30am to 12.00pm on Saturday 12th March 2022\nLocation: Zoom\nDetails: Join PNH patients and family members online for an informal chat. BYO refreshments.\nAll welcome! \nBYO refreshments. \n  \nPlease email contact@pnhuk.org for Zoom details.
URL:https://pnhuk.org/event/east-anglia-pnh-patient-and-family-zoom-meeting-12-march-2022/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/cup-2315563_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220223T050000
DTEND;TZID=UTC:20220223T180000
DTSTAMP:20260729T121233
CREATED:20220213T152238Z
LAST-MODIFIED:20220213T153659Z
UID:7074-1645592400-1645639200@pnhuk.org
SUMMARY:Looking after your mental wellbeing - join the AAT's Wellbeing Wednesdays!
DESCRIPTION:Maggie’s lead psychologist Lesley Howells joins the Aplastic Anaemia Trust (AAT) and their patient community members (including those with PNH) every week\, for an interactive and friendly session via Zoom with the focus on mental wellbeing at this very challenging time. \nWednesdays from 5pm to 6pm \nStruggling to cope with the uncertainty? It’s all over-whelming? Self-isolation is bringing back memories of gruelling treatment? You’d like to learn about simple ways to stay mentally and emotionally well or just want to chat with a specialist about your situation? Then this friendly weeky chat is for you. \nThere’s no commitment to join every week\, and if you’ve never joined us before do come to whatever session works for you – we would love to meet you. \nPlease register here \nPlease feel free to drop the AAT a line in advance if you have a specific question for Lesley or a concern that’s been playing on your mind – support@theaat.org.uk \nThe AAT is hugely grateful to Lesley and the wonderful Maggie’s Centres for their help at this tough time.
URL:https://pnhuk.org/event/looking-after-your-mental-wellbeing-join-the-aats-wellbeing-wednesdays/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/coffee-983955_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220216T173000
DTEND;TZID=UTC:20220216T183000
DTSTAMP:20260729T121233
CREATED:20220213T151606Z
LAST-MODIFIED:20220213T151606Z
UID:7072-1645032600-1645036200@pnhuk.org
SUMMARY:Webinar on Living with aplastic anaemia or PNH - with CNS\, Louise Arnold - 16 February 2022- 5.30pm
DESCRIPTION:This webinar hosted by the Aplastic Anaemia Trust (AAT) is all about dealing with any day to day difficulties people with aplastic anaemia might be struggling with. Whether you’re dealing with a sore mouth\, managing medication side effects or dealing with infections\, or something else entirely – bring your gripes and concerns to get tips on how to feel better. \nThis is your chance to raise your bugbears with a clinical nurse specialist\, and connect with a friendly online room full of people who understand what you’re going through. \nThis session will be led by Louise Arnold\, a Trainee Advanced Clinical Practitioner (Nurse) from the Department of Haematology at St James’ Institute of Oncology. \nTo register click here. \nIf you have a question for Louise\, or a specific topic you’d like us to talk about\, we would appreciate it if you could send it to the AAT in advance\, either at the time of booking or by emailing us at support@theaat.org.uk.
URL:https://pnhuk.org/event/webinar-on-living-with-aplastic-anaemia-or-pnh-with-cns-louise-arnold-16-february-2022-5-30pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/directory-1699948.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211211T103000
DTEND;TZID=UTC:20211211T120000
DTSTAMP:20260729T121233
CREATED:20211003T162654Z
LAST-MODIFIED:20211124T095823Z
UID:7040-1639218600-1639224000@pnhuk.org
SUMMARY:PNH Support and Connect December Meeting via  Zoom - Saturday 11 December
DESCRIPTION:Join us for a pre- holiday season patient and family Zoom meeting from 10.30am to 12pm. We will have guest speakers including PNH consultants to speak about latest updates and research on PNH. BYO refreshments! \n  \nInstructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the…
URL:https://pnhuk.org/event/pnh-support-and-connect-december-meeting-via-zoom-saturday-11-december/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/hot-chocolate-1782623_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211204T103000
DTEND;TZID=UTC:20211204T120000
DTSTAMP:20260729T121233
CREATED:20210806T102637Z
LAST-MODIFIED:20211124T095839Z
UID:6909-1638613800-1638619200@pnhuk.org
SUMMARY:PNH Support East Anglia Patient and Family Online meeting - Saturday 4 December 2021 - 10.30am to 12pm
DESCRIPTION:East Anglia Patient and Family Zoom meeting\nDate and Time: 10.30 – 12.00 Saturday 4th December 2021\nLocation: Zoom\nMeeting Details: Join PNH patients and family members online for an informal chat. BYO refreshments.\nAll welcome! \n  \nInstructions on using Zoom: https://www.ageuk.org.uk/…/how-to-use-zoom-for-the… \n  \nEmail contact@pnhuk.org for the Zoom details.
URL:https://pnhuk.org/event/pnh-support-east-anglia-patient-and-family-zoom-meeting-saturday-4-december-2021-10-30am-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/hot-chocolate-1782623_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211030T103000
DTEND;TZID=UTC:20211030T120000
DTSTAMP:20260729T121233
CREATED:20211003T162440Z
LAST-MODIFIED:20211003T162757Z
UID:7038-1635589800-1635595200@pnhuk.org
SUMMARY:PNH Support and Connect October Meeting via Zoom - Saturday 30 October 2021
DESCRIPTION:Join us for an informal chat with patients and family members from 10.30 to 12pm on Zoom. Please email contact@pnhuk.org for Zoom details.
URL:https://pnhuk.org/event/pnh-support-and-connect-october-zoom-meeting-saturday-30-october-2021/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/england-1500891_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T180000
DTEND;TZID=UTC:20211011T190000
DTSTAMP:20260729T121233
CREATED:20211008T152116Z
LAST-MODIFIED:20211008T152116Z
UID:7044-1633975200-1633978800@pnhuk.org
SUMMARY:2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO)
DESCRIPTION:2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO) by Dr Austin Kulasekararaj on Monday 11 October 2021 from 6pm to 7pm (GMT or 1pm to 2pm EDT). Please resgister here to attend.\n\nThis webinar focuses on the latest in research presented at the 2021 European Hematology Association(EHA) and American Society of Clinical Oncology (ASCO) annual meetings. Dr. Austin Kulasekararaj has selected a number of abstracts (research summaries) and provides a high-level assessment of new and ongoing research into treating aplastic anemia and/or PNH. There will be a Q & A session at the end of the presentation\nhttps://www.aamds.org/…/2021-aplastic-anemia-and-pnh…
URL:https://pnhuk.org/event/2021-aplastic-anemia-and-pnh-research-update-from-european-haematology-association-congress-2021-eha-and-american-society-of-clinical-oncology-asco/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/resources-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210904T103000
DTEND;TZID=UTC:20210904T120000
DTSTAMP:20260729T121233
CREATED:20210806T102204Z
LAST-MODIFIED:20210806T102821Z
UID:6907-1630751400-1630756800@pnhuk.org
SUMMARY:PNH Support East Anglia Patient and Family Face-to- face Meeting - 4 September 2021 - 10.30am to 12pm
DESCRIPTION:East Anglia Patient and Family Coffee and Cake meeting\nDate and Time: 10.30 – 12.00 Saturday 4th September 2021\nLocation: Bury Lane Farm Shop (outside seating)\nDetails: Join PNH patients and family members for an informal chat over coffee and cake. We will be sitting in socially distanced outdoor seating that is not under cover so please bring your own umbrellas\, blankets\, sun cream as appropriate! \n  \nAny questions please email contact@pnhuk.org.
URL:https://pnhuk.org/event/pnh-support-east-anglia-patient-and-family-meeting-4-september-2021-10-30am-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/cup-2315563_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210821T103000
DTEND;TZID=UTC:20210821T120000
DTSTAMP:20260729T121233
CREATED:20210806T100956Z
LAST-MODIFIED:20210806T100956Z
UID:6904-1629541800-1629547200@pnhuk.org
SUMMARY:PNH Support and Connect Meeting - Saturday 21 August 2021 - 10.30pm to 12pm
DESCRIPTION:Join us for an online (via Zoom) catch up with other PNH patients and family members. We will also present the findings from the latest patient and carer survey. \n  \nEmail us on contact@pnhuk.org for the Zoom details.
URL:https://pnhuk.org/event/pnh-support-and-connect-meeting-saturday-21-august-2021-10-30pm-to-12pm/
ATTACH;FMTTYPE=image/jpeg:https://pnhuk.org/wp-content/uploads/2021/04/afternoon-3157393_1920.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210412T080000
DTEND;TZID=UTC:20210412T170000
DTSTAMP:20260729T121233
CREATED:20210411T234330Z
LAST-MODIFIED:20210411T234330Z
UID:89-1618214400-1618246800@pnhuk.org
SUMMARY:Test Event
DESCRIPTION:loerem
URL:https://pnhuk.org/event/test-event/
END:VEVENT
END:VCALENDAR