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X-ORIGINAL-URL:https://pnhuk.org
X-WR-CALDESC:Events for PNH Support
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DTSTART:20210101T000000
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DTSTART;TZID=UTC:20220702T120000
DTEND;TZID=UTC:20220702T143000
DTSTAMP:20260806T234110
CREATED:20220620T175753Z
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SUMMARY:East Anglia PNH Support Group Summer Meal - Saturday 2 July 2022 at 12pm
DESCRIPTION:The East Anglia PNH Support patient group is having an informal pub garden lunch on Saturday 2 July at 12pm. This is a chance for patients and their families to get together. Everyone welcome!\nFor more details and to RSVP (by June 27th 2022) please email contact@pnhuk.org.
URL:https://pnhuk.org/event/east-anglia-pnh-support-group-summer-meal-2-july-2022-at-12pm/
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DTSTART;TZID=UTC:20220705T160000
DTEND;TZID=UTC:20220705T170000
DTSTAMP:20260806T234110
CREATED:20220620T175051Z
LAST-MODIFIED:20220620T175126Z
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SUMMARY:ERN-EuroBloodNet Webinars for Patients: Risk and Course of COVID-19 in AA/ PNH Patients\, Including Vaccination Strategies
DESCRIPTION:The European Reference Network\, EuroBloodNet has organised a patient webinar: Risk and Course of COVID-19 in AA and/or PNH Patients\, including vaccination strategies. The webinar aims to provide highly specialised and cutting-edge knowledge for patients and their families. It is led by experts in the field of AA and PNH\, health professionals and patients representatives. The program has been shaped with 2 patients associations: PNH Support (focused on PNH represented by Maria Piggin) and Lichterzellen (focused on AA and PNH and represented by Pascale Olivia Burmester).\n\nThe webinar will be held on Tuesday 5th of July from 4pm to 5pm (BST)\nWebinar contents:\n\n\nPresentations: Prof Corrado Girmenia (AOU Policlinico Umberto I – Rome) and Dr Austin Kulasekararaj (King’s College London).\nRound Table: Prof Régis Peffault de la Tour (Assistance Publique-Hôpitaux de Paris\, Hôpital Saint-Louis)\, Prof Antonio Risitano (AOU Federico II – Naples)\, Prof Carlo Dufour (IRCCS Institute Giannina Gaslini – Genoa).\nQuestion&Answer: Maria Piggin (PNH Support and PNH Global Alliance) and Pascale Olivia Burmester (Lichterzellen and PNH Global Alliance) are moderating the session.\n\n\nSubmit your questions to be answered at the webinar and register to attend.\nIf you would like to ask any questions on the risks and course of COVID in AA and/or PNH patients\, including vaccination strategies you can click on the link below and submit them here\n\n \nRegister here to attend the webinar \nClick here to register for the webinar.
URL:https://pnhuk.org/event/ern-eurobloodnet-webinars-for-patients-risk-and-course-of-covid-19-in-aa-and-pnh-patients-including-vaccination-strategies/
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