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X-WR-CALDESC:Events for PNH Support
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DTSTART;TZID=Europe/London:20230902T110000
DTEND;TZID=Europe/London:20230902T130000
DTSTAMP:20260804T041810
CREATED:20230719T150251Z
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UID:7671-1693652400-1693659600@pnhuk.org
SUMMARY:Face-to-face London Patient Meeting - Saturday 2 September 2023
DESCRIPTION:One of our members (Victoria) has offered to host a London face-to-face patient meeting on Saturday 2 September 2023 from 11am at the Hayward Gallery cafe located on the first floor of the Hayward Gallery building in central London. It is a few minutes walk from Waterloo station and is well connected by buses.\n\nThe cafe serves a light lunch salad bar\, a variety of pastries\, teams and coffee. It has a large seating area with tables of various sizes which can be joined together.\n\nSuggested discussion topic: personal experience of fatigue\, perception\, feeling and understanding of it and ways of dealing with it – plus anything else anyone is willing to share.\n\nEmail us on contact@pnhuk.org with any questions.
URL:https://pnhuk.org/event/face-to-face-london-patient-meeting-2-september-2023/
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230912T070000
DTEND;TZID=Europe/London:20230912T200000
DTSTAMP:20260804T041810
CREATED:20230804T131336Z
LAST-MODIFIED:20230804T131439Z
UID:7702-1694502000-1694548800@pnhuk.org
SUMMARY:Managing Stress and Uncertainty 12 week online course - starts 12 September\, 7pm to 8pm
DESCRIPTION:This 12 week course will help you learn techniques to help you face the challenges of living with PNH. There are six weeks of learning sessions\, interspersed with six weeks of supported sessions where you are encouraged to try out the techniques you have learned in your day-to-day life.\n\nTopics include understanding stress and uncertainty\, learning how to respond to difficult thoughts and emotions\, how to use everyday mindfulness\, and how to live life in the way that matters to you despite stress and uncertainty. The strategies are straightforward and easy to build into your day.\n\n\nSession dates \n\n12th September 2023 – 7-8pm\n19th September 2023 – 7-8pm\n26th September 2023 – 7-8pm\n3rd October 2023 – 7-8pm\n10th October 2023 – 7-8pm\n17th October 2023 – 7-8pm\n24th October 2023 – 7-8pm\n31st October 2023 – 7-8pm\n7th November 2023 – 7-8pm\n14th November 2023 – 7-8pm\n21st November 2023 – 7-8pm\n28th November 2023 – 7-8pm\n\nWith thanks to…\nOur Better Together Alliance charities are able to work together and offer you this course because of support from The National Lottery Community Fund. Thanks to players of The National Lottery \n\n  \n \n  \nFor more information and to register click here.
URL:https://pnhuk.org/event/managing-stress-and-uncertainty-12-week-online-course-starts-12-september-7pm-to-8pm/
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DTSTART;TZID=Europe/London:20230923T110000
DTEND;TZID=Europe/London:20230923T130000
DTSTAMP:20260804T041810
CREATED:20230904T201159Z
LAST-MODIFIED:20230904T201159Z
UID:7716-1695466800-1695474000@pnhuk.org
SUMMARY:Cheshire PNH Patient and Family Meeting - Saturday 23 September 2023
DESCRIPTION:Join patients and family members for a face-to-face get together at Bents Garden Centre Warrington Road\, Glazebury\, Warrington\, Cheshire\, WA3 5NT on Saturday 23 September 2023 at 11am. \nSue and Colin Coles will be at the entrance to direct you to the right coffee place if needed. Partners\, carers or family welcome too.
URL:https://pnhuk.org/event/cheshire-pnh-patient-and-family-meeting-saturday-23-september-2023/
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DTSTART;TZID=Europe/London:20230928T190000
DTEND;TZID=Europe/London:20230928T210000
DTSTAMP:20260804T041810
CREATED:20230804T112723Z
LAST-MODIFIED:20230804T131519Z
UID:7698-1695927600-1695934800@pnhuk.org
SUMMARY:Mindfulness Course (8 weeks online) - from 28 September\, 7pm to 9pm
DESCRIPTION:If you’re living with a condition and being supported by any of the charities listed below\, whether you have it yourself or you’re supporting a close family member\, you will likely be dealing with a lot of stress and uncertainty. Brought to you as part of the Better Together Alliance Project\, this course is designed to help you to deal with the emotional burden of living with these conditions.  \n \nMindfulness helps us find calm\, even when we feel overwhelmed\, it helps us create clarifying and compassionate pauses for our minds. \nThis course is designed to help you to deal with the emotional burden of living with this condition. \nJoin our eight-week course taught online from 28th September\, 7-9pm. \nSession dates\nPlease add these dates to your diary! You will receive an email the day before each session as a reminder\, with the Zoom link. \n\n28th September 2023 – 7pm-9pm\n5th October 2023 – 7pm-9pm\n12th October 2020 – NO SESSION\n19th October 2023 – 7pm-9pm\n26th October 2023 – 7pm-9pm\n2nd November 2023 – 7pm-9pm\n9th November 2023 – NO SESSION\n16th November 2023 – 7pm-9pm\n23rd November 2023 – 7pm-9pm\n30th November 2023 – 7pm-9pm\n\nWith thanks to…\nOur Better Together Alliance charities are able to work together and offer you this course because of support from The National Lottery Community Fund. Thanks to players of The National Lottery. \n \n  \nFor more information and to register\, click here
URL:https://pnhuk.org/event/register-for-8-week-online-mindfulness-course-from-28-september-7pm-to-9pm/
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