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X-WR-CALDESC:Events for PNH Support
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UID:7867-1709980200-1709985600@pnhuk.org
SUMMARY:East Anglia Face-to- Face Patient and Family Meeting - 9 March 2024
DESCRIPTION:An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome.\nWe have booked outside seating\, so fingers crossed that the weather will be good! Please let us know if you plan to attend so that we can confirm numbers to the café. Email contact@pnhuk.org. \nPlease note that you will need to pay for your own refreshments. \nLocation: Bury Lane Farm Shop Café\, A10 By Pass\, Melbourn\, Royston\, Herts\, SG8 6DF ​ \n(https://burylanefarmshop.co.uk/contact )
URL:https://pnhuk.org/event/east-anglia-face-to-face-patient-and-family-meeting-9-march-2024/
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DTSTART;TZID=Europe/London:20240331T080000
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DTSTAMP:20260803T155833
CREATED:20240203T143723Z
LAST-MODIFIED:20240203T143820Z
UID:7869-1711872000-1711904400@pnhuk.org
SUMMARY:Super Rare Campaign 2024 -1 February to 31 March 2024
DESCRIPTION:Welcome to Super Rare! Super Rare is all about being rare\, but not alone. Our charities designed this campaign together to help people affected by Super Rare conditions to come together as a community. So sign up for an event\, organise one\, or order your pack now to start planning how you can get involved during February and March and earn your t-shirt! \nFind out more here \n 
URL:https://pnhuk.org/event/super-rare-campaign-2024-1-february-to-31-march-2024/
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