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X-WR-CALDESC:Events for PNH Support
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DTSTART;TZID=Europe/London:20250208T100000
DTEND;TZID=Europe/London:20250208T113000
DTSTAMP:20260802T044407
CREATED:20241211T101520Z
LAST-MODIFIED:20241211T101520Z
UID:8066-1739008800-1739014200@pnhuk.org
SUMMARY:Taking Tablets Webinar - 8 February 2025 - 10am to 11.30am
DESCRIPTION:Now that there are PNH treatments available which are in tablet form (danicopan and iptacopan)\, join us to hear some advice and tips about taking tablets regularly from a patient as well as the PNH National Service who can answer any questions relating to PNH tablet treatment \n\n10am – 10.45am – presentation\n10.45am  to 11.00am – Q&A\n11.00am to 11.30am – general chat for patients/carers\n\nTo register please email us at contact@pnhuk.org
URL:https://pnhuk.org/event/taking-tablets-webinar-8-february-2025-10am-to-11-30am/
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250212T180000
DTEND;TZID=Europe/London:20250212T193000
DTSTAMP:20260802T044407
CREATED:20241129T150236Z
LAST-MODIFIED:20241204T105731Z
UID:8050-1739383200-1739388600@pnhuk.org
SUMMARY:Managing Stress and Uncertainty Online 6 Week Course - starts 12 Feb 2025 - 6pm to 7.30pm
DESCRIPTION:Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member)\, this course is designed to help you to deal with the emotional burden of living with these conditions. \n  \nThis course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are six weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT\, an evidence-based therapeutic approach\, that people say makes immediate sense. The strategies are straightforward and easy to build into your day.  \nTopics include understanding stress and uncertainty\, learning how to respond to difficult thoughts and emotions\, how to use everyday mindfulness\, and how to live life in the way that matters to you despite. stress and uncertainty.  \n  \nSession dates \n\nWednesday 12th February 2025 at 6pm\nWednesday 19th February 2025 at 6pm\nWednesday 26th February 2025 at 6pm\nWednesday 5th March 2025 at 6pm\nWednesday 12th March 2025 at 6pm\nWednesday 19th March 2025 at 6pm\n\nFor more information or to register see here
URL:https://pnhuk.org/event/managing-stress-and-uncertainty-online-course/
ATTACH;FMTTYPE=image/png:https://pnhuk.org/wp-content/uploads/2024/11/mood-7529903_1280.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250213T183000
DTEND;TZID=Europe/London:20250213T203000
DTSTAMP:20260802T044407
CREATED:20241129T145939Z
LAST-MODIFIED:20241220T142221Z
UID:8047-1739471400-1739478600@pnhuk.org
SUMMARY:Mindfulness for Stress  - Online 8 Week Course - starts 13 Feb 2025 - 6.30pm to 8.30pm
DESCRIPTION:Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member)\, this course is designed to help you to deal with the emotional burden of living with these conditions.\n\n\nWe can’t always choose what happens to us in life\, but we can pause to choose how we wish to respond.  \nIt sounds so simple…  just press the pause button then calmly decide how to respond in a measured way to the problem\, what to do\, what to say\, how to say it.  \nWe all know pausing isn’t simple. Thoughts\, emotions\, and physical sensations in our bodies are very powerful. So quickly we can find ourselves swept away in a torrent of fears\, worries\, uncertainty\, despair\, anger\, irritation\, guilt\, frustration…. Often prompting us to act in ways that just add to the problem.\n \nThere are creative and imaginative ways of settling the busyness of our minds to find the clear space to choose how we want to respond to whatever life brings us\, in our everyday or when going through particularly stressful times\, and one way is through Mindfulness. \nMindfulness helps us find an extra energizing dimension to our lives\, even when we feel overwhelmed\, it helps us create clarifying and compassionate pauses for our minds to settle so moment by moment we can choose to be the person that matters to us. \nSession dates: \n\nThursday 13th February – 6.30pm-8.30pm\nThursday 20th February – 6.30pm-8.30pm\nThursday 27th February – 6.30pm-8.30pm\nThursday 6th March – 6.30pm-8.30pm\nThursday 13th March – 6.30pm-8.30pm\nThursday 20th March – 6.30pm-8.30pm\nThursday 27th March – 6.30pm-8.30pm\nThursday 3rd April – 6.30pm-8.30pm\n\n  \n\n\nFor more information or to register see here
URL:https://pnhuk.org/event/mindfulness-for-stress-course/
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250215T103000
DTEND;TZID=Europe/London:20250215T130000
DTSTAMP:20260802T044407
CREATED:20250122T172030Z
LAST-MODIFIED:20250122T172030Z
UID:8105-1739615400-1739624400@pnhuk.org
SUMMARY:Coffee and Cake In Support of PNH Support and the AAT
DESCRIPTION:Join a coffee and cake morning with a variety of stalls including a tombola – cash only! Raising money for PNH Support and the Aplastic Anaemia Trust. \nVenue: St James’ Church\, 74D Coventry St\, Southam CV47 0EA \nTime: 10.30am to 1pm \nhttps://stjames-southam.co.uk/
URL:https://pnhuk.org/event/coffee-and-cake-in-support-of-pnh-support-and-the-aat/
LOCATION:St James Church Southam
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250220T120000
DTEND;TZID=Europe/London:20250220T130000
DTSTAMP:20260802T044407
CREATED:20250120T212344Z
LAST-MODIFIED:20250120T213112Z
UID:8092-1740052800-1740056400@pnhuk.org
SUMMARY:Webinar: Self Confidence and Advocacy - 20 February 2025
DESCRIPTION:This webinar on 20 February 2025 from 12pm to 1pm is designed to help you find the confidence to advocate for yourself or your loved one\, and the words when you need them. We will discuss strategies that help you relax in conversations or email interactions\, pausing to get across what you wish to say in a courteous but convincing and effective manner. \nRegister here
URL:https://pnhuk.org/event/webinar-self-confidence-and-advocacy-20-february-2025/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250224T180000
DTEND;TZID=Europe/London:20250224T190000
DTSTAMP:20260802T044407
CREATED:20250221T123550Z
LAST-MODIFIED:20250221T123551Z
UID:8138-1740420000-1740423600@pnhuk.org
SUMMARY:Living Well with Aplastic Anaemia – 24th February\, 6pm
DESCRIPTION:Our charity partners The Aplastic Anaemia Trust are hosting a webinar and you are invited to join.\n\nThis webinar focused on living well with Aplastic Anaemia. This session will offer practical strategies for cultivating resilience and well-being while navigating the emotional and psychological challenges of an Aplastic Anaemia diagnosis.\n\nSign up here.
URL:https://pnhuk.org/event/living-well-with-aplastic-anaemia-24th-february-6pm/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250227T120000
DTEND;TZID=Europe/London:20250227T130000
DTSTAMP:20260802T044407
CREATED:20250225T152348Z
LAST-MODIFIED:20250225T152348Z
UID:8146-1740657600-1740661200@pnhuk.org
SUMMARY:Emotional Wellbeing
DESCRIPTION:How do I manage times of change in my child’s life? This webinar will help you and your child cope with the practical and emotional demands of life transition and find balance between keeping your child safe and helping them become more independent. \nhttps://www.theaat.org.uk/Event/webinar-how-do-i-manage-times-of-change-in-my-childs-life \ninar-how-do-i-manage-times-of-change-in-my-childs-life
URL:https://pnhuk.org/event/emotional-wellbeing/
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