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X-WR-CALDESC:Events for PNH Support
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UID:8246-1746612000-1746619200@pnhuk.org
SUMMARY:Mindfulness for Stress Taster Session
DESCRIPTION:Not sure if a mindfulness-based approach is for you?   Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you.\nClick here for further details
URL:https://pnhuk.org/event/mindfulness-for-stress-taster-session-2/
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DTSTART;TZID=Europe/London:20250513T080000
DTEND;TZID=Europe/London:20250617T170000
DTSTAMP:20260801T233121
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UID:8244-1747123200-1750179600@pnhuk.org
SUMMARY:COURSE Managing Stress and Living with Uncertainty with Catarina Baptista
DESCRIPTION:This course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are six weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT\, an evidence-based therapeutic approach\, that people say makes immediate sense. The strategies are straightforward and easy to build into your day.\n\nTopics include understanding stress and uncertainty\, learning how to respond to difficult thoughts and emotions\, how to use everyday mindfulness\, and how to live life in the way that matters to you despite. stress and uncertainty.\n\nRegister here.
URL:https://pnhuk.org/event/course-managing-stress-and-living-with-uncertainty-with-catarina-baptista/
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DTSTART;TZID=Europe/London:20250517T103000
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SUMMARY:PNH Patient/Family Online Meeting - Saturday 17 May 2025 - 10.30am to 12pm
DESCRIPTION:Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome!\n\n\n\nDate: Saturday 17 May 2025\nTime: 10.30am to 12pm\n\n\nEmail contact@pnhuk.org for the Zoom details. If you need assistance using Zoom please also get in touch.
URL:https://pnhuk.org/event/pnh-patient-family-online-meeting-saturday-17-may-2025/
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DTSTART;TZID=Europe/London:20250529T120000
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UID:8236-1748520000-1748523600@pnhuk.org
SUMMARY:How to use books and other resources to build family resilience
DESCRIPTION:Themes covered in this webinar will include:\n\n\nRecommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children\, help them manage tricky emotions and build overall family resilience.\nHow to use books and other resources\nRecommendations of social media and websites that your child and teen can access safely.\n\n\nSign up here
URL:https://pnhuk.org/event/how-to-use-books-and-other-resources-to-build-family-resilience/
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