ANNUAL RARE DISEASE PATIENT NETWORK MEETING – WALES
September 30, 2018
Thursday, 18 October 10:00-15:00
Holiday Inn, Cardiff City Centre, Castle Street, Cardiff, CF10 1XD
This free event, hosted by Genetic Alliance UK and Wales Gene Park, will include talks from patients and researchers on their experiences of rare and genetic conditions and a workshop from Professor Fiona Verity, Swansea University, on using social care research to improve opportunities for patients and families.