The Guide to Living Well with PNH – developed by the Canadian Association of PNH Patients
December 1, 2018
Now in its second edition, The Guide to Living Well with PNH contains patient quotes, expert tips, and tools to help patients and caregivers not only better manage this condition, but thrive with it. The Canadian Association of PNH Patients has updated this “go-to” resource to include information on the latest news in PNH research, navigating the complexities of accessing treatment through clinical trials, traveling with PNH, and more. We are grateful to the Canadian Association of PNH Patients for sharing this excellent resource with us.