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February 2019

Westminster Rare Disease Day Reception

February 27 @ 1:00 pm - 3:30 pm
Houses of Parliament, Westminster
London,

To mark Rare Disease Day 2019 (28 February), Genetic Alliance UK will be hosting annual receptions at the Senedd in Cardiff, the House of Commons in London, and the Scottish Parliament Building in Holyrood. You are invited to join parliamentarians, Assembly Members, rare disease patients and others in the rare disease community to mark Rare Disease Day 2019. Details of the Westminster event is here: https://www.eventbrite.co.uk/e/rare-disease-day-2019-westminster-reception-tickets-54521153237?mc_cid=de27e9636b&mc_eid=b717582c6d

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March 2019

Holyrood Rare Disease Day Reception

March 5 @ 6:00 pm - 8:00 pm
Holyrood Edinburgh,

To mark Rare Disease Day 2019 (28 February), Genetic Alliance UK will be hosting annual receptions at the Senedd in Cardiff, the House of Commons in London, and the Scottish Parliament Building in Holyrood. You are invited to join parliamentarians, Assembly Members, rare disease patients and others in the rare disease community to mark Rare Disease Day 2019. Details of the event can be found here:https://www.eventbrite.co.uk/e/rare-disease-day-2019-holyrood-reception-tickets-54521087039?mc_cid=de27e9636b&mc_eid=b717582c6d

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PNH Support East Anglia Region Patient Support Meeting

March 23 @ 10:30 am - 12:30 pm
Bury Lane Farm shop (SG8 6DF), SG8 6DF

PNH patients and family members living in the East Anglia region are invited to join others to chat and share experiences over refreshments. Please RSVP to Caroline Fookes by emailing contact@pnhuk.org.

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PNH Support North West Region Patient Support Meeting

March 30 @ 10:30 am - 12:30 pm
Bents Garden and Home, Glazebury, near Warrington, WA3 5NT, Glazebury, near Warrington WA 5NT

PNH patients and family members living in the North West are invited to join others to chat and share experiences over refreshments. Please RSVP to Sue Coles by emailing contact@pnhuk.org.

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April 2019

PNH Support London Patient Meeting

April 13 @ 11:00 am - 2:00 pm
Siobhan Davies Dance Studio, 85 St George's Road
London, SE1 6ER

PNH patients and family members are invited to join others to chat and share experiences over light refreshments. Please RSVP by emailing contact@pnhuk.org.

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May 2019

PNH Support East Anglia Region Patient Support Meeting

May 13 @ 10:30 am - 12:30 pm
Cambridge Cancer Help Centre CB22 5JT

PNH patients and family members living in the East Anglia region are invited to join others to chat and share experiences over refreshments. Please RSVP to Caroline Fookes by emailing contact@pnhuk.org.

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June 2019

PNH Support Annual General Meeting

June 8 @ 11:00 am - 12:30 pm
The Front Room, Royal Exchange Theatre, St Ann’s Square, Manchester M2 7DH, St Ann’s Square
Manchester, M2 7DH
+ Google Map

Members of PNH Support are invited to the AGM at 11am followed by a light lunch at 12.30pm. Following lunch a patient meeting will be held until 2pm which is open to all PNH patients and family members (even if they are not members of PNH Support members). RSVP to contact@pnhuk.org by 27 April 2019 with any dietary requirements.

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PNH Support Patient Meeting – Manchester

June 8 @ 12:30 pm - 3:00 pm
The Front Room, Royal Exchange Theatre, St Ann’s Square, Manchester M2 7DH, St Ann’s Square
Manchester, M2 7DH
+ Google Map

Following our AGM which is open to PNH Support members only, we are hosting a light lunch and patient meeting from 12.30pm to 3pm. We hope to have speakers on topical subjects presenting. All PNH patients and family members are welcome. Please RSVP by 27 April 2019 with any dietary requirements to contact@pnhuk.org.

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November 2019

PNH Support East Anglia Region Patient Support Meeting

November 11 @ 10:30 am - 12:30 pm
Cambridge Cancer Help Centre CB22 5JT

PNH patients and family members living in the East Anglia region are invited to join others to chat and share experiences over refreshments. Please RSVP to Caroline Fookes by emailing contact@pnhuk.org.

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