Please read the following terms and conditions carefully as they govern the use of this website.
All material contained within the PNH Support website (www.pnhuk.org) is covered by a disclaimer and protected by copyright laws. Access to this website (www.pnhuk.org) is subject to the following conditions:
The “PNH Support” logo is the property of PNH Support and cannot be used without our permission. All other trademarks and logos used on this website are the trademarks or logos of their respective owners.
Links to other websites
This website contains links to other websites that are operated by third parties. PNH Support does not accept any liability for the content of these third-party sites. The existence of these links do not constitute an endorsement of such websites, and your linking to these sites is at your own risk.
Whilst all reasonable efforts have been made to ensure the accuracy of content, no responsibility can be taken for any error or omission. All content of this website is provided for information purposes only and is not intended to be a substitute for professional medical advice relating to a specific medical condition or question.
All photographs on the site are either the copyright of PNH Support, used with permission from or its trustees or members or downloaded free from Pixelbay. No photographs on the website may be copied or published without permission from the copyright holder for which you will need to contact PNH Support.
[a] PNH Support owns the copyright of, and other intellectual property rights, in www.pnhuk.org and its contents. “Rights” means copyright, database rights, trademarks, design rights and other intellectual and proprietary rights of whatever nature, anywhere in the world. You acknowledge that (i) PNH Support is protected by these Rights; (ii) these Rights are valid and protected in all media and technologies existing now or later developed; and (iii) except as explicitly provided otherwise, these Terms and Conditions and applicable copyright, trademark and other laws govern your use of such Rights.
[b] You may view, print, download or store extracts from www.pnhuk.org for your personal, non-commercial reference without alteration, addition or deletion. You may not otherwise copy, replicate, distribute, publish, commercially exploit or otherwise transfer any www.pnhuk.org material or content without prior consent.
Limitation of liability
PNH Support does not guarantee that access to this website will be uninterrupted; that this website will be free from viruses or that this website cannot be tampered with by third parties. This website and the information are provided on an ‘as is’ basis, with no warranties of any kind whatsoever, either express or implied, including, but not limited to, any warranties or any implied warranties of merchantability or fitness for a particular purpose. Use of this website and the information is entirely at the user’s sole risk. In no event will PNH Support be liable for any damages whatsoever arising out of or related to this website. Your sole and exclusive remedy for dissatisfaction with this website and/or information is to stop using the site and the information.
Modification of the Terms and Conditions
PNH Support may modify the terms of this agreement on this site. You agree to periodically review this agreement to be aware of any such revisions. Should the revision be unacceptable to you, you agree to stop accessing this site. Your continued use of this website following such notification of any such revision(s) shall be deemed as acceptance of an agreement to abide by all such revisions.
These Terms and Conditions shall be governed by and construed in accordance with the laws of England and Wales. Disputes arising here from shall be exclusively subject to the jurisdiction of the courts of England and Wales.
If any of these Terms and Conditions should be determined to be illegal, invalid or otherwise unenforceable by reason of the laws of any state or country in which these Terms and Conditions are intended to be effective, it shall be severed and deleted from this clause. All other Terms and Conditions shall remain in full force and continue to be binding and enforceable.
PNH Support reserves the right to change any of its terms and conditions at any time by posting changes online.
Privacy statement (as at 12/05/2018)
This statement only applies to the PNH Support web site at www.pnhuk.org.
PNH Support is exempt from registration with the Office of the Information Commissioner for the purposes for which personal information is collected on this website.
Personally identifiable information
PNH Support will only collect personal information when you specifically and knowingly provide it to us. Examples of personal information are your name, address, postal and email addresses.
Where stated we may use the personal information you provide to contact you in the future about PNH Support’s work. If you do not want this to happen please tick the appropriate box where provided.
Personal information given at the time of registration will be used to contact you regarding any queries with your account. By registering with us you agree that this is acceptable. We will not share your personal information with any third parties.
Non-personally identifiable information
Aggregate or summary information may be collected automatically by our system e.g. number of visitors to the site. In order to do this, we may need to send cookies to your PC. This information is used to monitor use of the website and will not contain information that can identify you as an individual.
Third party sites
This website contains links to other websites. Please be notified that PNH Support cannot be held responsible for the privacy practices of other web sites. We encourage all visitors to be aware and read the privacy statements of each and every web site that collects personally identifiable information.
Privacy statement changes
PNH Support may change this privacy statement at any time. You are advised to read this statement each and every time so that you are satisfied with the privacy conditions under which you provide PNH Support with your personal information.