Caroline was born and educated in the republic of Ireland. After leaving University she served with Voluntary Service Overseas in Lagos, Nigeria, teaching English to student nurses. Since then Caroline has lived in the UK.
Work has included teaching drama in both primary and secondary schools and after a course in Community Arts at Manchester she set up a community arts business, taking drama workshops to a wide range of groups, as well as Theatre-in-Education to secondary schools.
Retirement has involved running a village market, editing the village newsletter, acting as a school governor at the local primary school and enjoying family and grand-children.
PNH was not diagnosed until 2013 and Caroline started treatment with Eculizumab in 2015. The shock of finding herself with a rare disease which no one – apart from a few medics – had ever heard of, brought on a feeling of isolation and the need to talk to others about it.
Caroline became a Trustee of PNH Support and set up the Anglia Region Support Group in 2016 with informal meetings for patients and family members six times a year, alternating in the Cambridge Cancer Help Centre and a farm shop café. The gatherings are very popular and all really seem to benefit from the opportunity to talk about PNH concerns and issues. As a Trustee she is happy to help others set up similar groups.
When other commitments and health and energy allow, Caroline enjoys gardening, walking, oil painting and print-making.