Maria founded PNH Support in 2015. Originally from New Zealand, Maria moved to the UK in 2001. Maria previously worked as a solicitor in both New Zealand and England before embarking on roles in patient advocacy. In 2016, Maria completed the European Patients’ Academy of Therapeutic Innovation’s (EUPATI) course in the Medicines Research and Development Process. As well as running PNH Support she is employed by the NIHR Imperial BRC Patient Experience Research Centre within the School of Public Health at Imperial College London. In this role, she works with publicly funded research teams to facilitate and support their involvement of patients and the public in their public health research.
Maria also holds the following positions:
co-chair of the EUPATI UK network (of which she has been a member since 2016)
one of 7 patient representatives on the European Reference Network, EuroBloodNet representing bone marrow failure diseases
a member of the European Haematology Association’s Taskforce on Fair Pricing of Drugs
a patient reviewer for the British Medical Journal and Research, Involvement and Engagement
Maria lives in London and enjoys travelling to Europe whenever possible.