Lucy is a PNH patient who became a member of PNH Support at diagnosis in 2015.  Lucy spent many years working in the jewellery business, predominantly in London.  After diagnosis, Lucy decided to change direction and retrain.  Since 2017 Lucy has been working as a clinical coder and summariser in a busy GP practice.  This role gives a valuable insight into patients’ journeys from the initial investigations to diagnosis and their subsequent management pl