As the current COVID 19 situation evolves, guidance and links to resources will be updated. We recommend that you speak to your hospital consultant for advice relevant to you (as everyone is different).
Further to restrictions being lifted on 19 July 2021, the Government has published updated guidance for those who have been identified as clinically extremely vulnerable (20/07/21) as follows:
Who this guidance is for
What has changed
Socialising inside and outside the home
School, college and other educational settings
Going to shops and pharmacies
If you require additional care and support
Definition of clinically extremely vulnerable groups
The PNH National Service has provided guidance (13/04/21) about PNH and Aplastic Anaemia patients receiving the COVID 19 vaccination. Please contact your local PNH National Service team if you would like to discuss your vaccination further.
Please also remember to look after your mental health at this time, please see here for more information
Public Health England has also published guidance here.
The Aplastic Anaemia has published a list of resources recommended by Kings College London Hospital here
MIND – mental health charity
Give us a Shout – TEXT 85258 24/7 for mental health support
The Aplastic Anaemia Trust’s most recent interactive Q&A with a haematology specialist from King’s College Hospital, Dr Shreyans Gandhi, aimed at aplastic anaemia and PNH patients took place on 31 March 2020. The transcript of key points is available here.
Scientific papers published on PNH and COVID 19:
– This study reviewed four PNH patients who contracted COVID 19 (two on treatment and two who were not) and how they were affected. “How treatment with a C5 inhibitor affects inflammation during COVID 19" (first published 4 June 2020). Here is a link to the academic paper entitled “Terminal complement inhibition dampens the inflammation during COVID 19"
– The Aplastic Anaemia Trust announces research to be undertaken by the University of Leeds and the PNH National Service on the effectiveness of COVID 19 vaccines on PNH and AA patients. February 2021