The aim of the PNH Global Alliance is to advocate in the best interests of PNH patients world wide through collaboration.
Current members of the PNH Global Alliance are listed below:
Specific objectives of the PNH Global Alliance include (but are not limited to):
-promoting research and development for innovative medicines and procedures to treat and cure PNH
-advocating for PNH patients to be actively involved in the research and development process of medicines from as early a stage as possible
To contact the PNH Global Alliance’s please email: firstname.lastname@example.org.
Patient organisations supporting patients living with PNH are eligible to join the PNH Global Alliance. Please contact: email@example.com.