Our Events

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. How do I keep a family routine? For more information and to register, click here 

Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is life long, this isn't always easy. People are faced with physical, psychological and practical hurdles that at first feel unsurmountable. This course is designed - with the help of people with bone marrow conditions […]

This shortened course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are three weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT, an evidence-based therapeutic approach, that people say makes immediate sense. The strategies are straightforward […]

Join PNH patients and family members for an informal chat over coffee and cake.  Please note that you will need to pay for your own refreshments. Please contact contact@pnhuk.org if you have any questions

This is an informal Saturday morning catch-up for all members of our PNH community. Newcomers and regulars are most welcome. The venue information can be found here. Please email contact@pnhuk.org with any questions.