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Patient Stories

PNH Support/Resources/Patient Stories

Pam’s story

Tom’s story

Jane’s story (Northern Ireland)

Kirsten’s story

Eric’s story

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Upcoming Events

Dec 2
10:30 am - 12:00 pm

East Anglia Online Patient and Family Meeting

Dec 2
11:00 am - 1:00 pm

Face-to-face London Patient & Family Meeting – Saturday 2 December 2023

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Recent Posts
  • Small Charities Week!
  • PNH features in Lancet Haematology
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
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