Home (current)
About
About PNH Support Membership Funding Contact us
What is PNH?
What is PNH? Signs and Symptoms Newly Diagnosed Information Diagnosis Current Treatments Pregnancy, Fertility & Menopause Research and Clinical Trials
News (current)
Membership (current)
Events (current)
Resources
Emotional Wellbeing Support Videos, Webinars, Podcast Patient Stories Living with PNH Travelling with PNH Patient safety card Rare Patient Passport Glossary Policies and Guidelines Covid-19 PNH National Service EuroBloodNet
Donate Now (current)

Resources

PNH Support/Resources

We hope you find these resources useful.

Resources

Patient Stories
Pam's story
Tom's story
India's story
Jane's story (Northern Ireland)
Kirsten's story
Eric's story
Patient safety card
Living with PNH
Travelling with PNH
Pregnancy, Fertility & Menopause
Glossary
Videos, Webinars, Podcast
PNH National Service
EuroBloodNet
Covid-19

Upcoming Events

Sep 19

10:30 am - 12:00 pm

East Anglia Group Patient and Family Face-to-Face meeting

Nov 7

10:30 am - 12:00 pm

Online PNH Patient and Family Meeting (Zoom)

Mar 20

10:30 am - 12:00 pm

East Anglia Group Patient and Family Face-to-Face meeting

May 8

10:30 am - 12:00 pm

Online PNH Patient and Family Meeting (Zoom)

Recent Posts

EHA 2026 Congress: Representing the PNH Community
PNH Support celebrates its 10 Year Anniversary!
Living with PNH in your 20’s
Super Rare Campaign 2025
Join in with Super Rare 2025!

Archives

Latest Tweets

Quick Links

About PNH Support
Membership
Resources
Covid-19

Legal

Disclaimer
Legal

Copyright ©

PNH SUPPORT