In June, PNH Support trustee Virginia Bertelli attended the European Haematology Association (EHA) Congress 2026 in Stockholm as a representative of the PNH Global Alliance, of which PNH Support is […]
PNH Support 10th Anniversary Event – Saturday 11 October 2025, The Wesley Hotel, London By Daisy Evans PNH Support marked its 10th anniversary in style with a fantastic day of […]
Check out this article recently published in Rare Revolution magazine where our trustee Virginia Bertelli and one of our volunteers, Jovi discuss their experiences of living with PNH.
How will you get involved? Celebrate Rare Disease Day (28th February) and help bring people affected by PNH together during our 10 year anniversary year. The money you fundraise during February […]
Join in with Super Rare our annual fundraising campaign and celebrate Rare Disease Day (28.02.25)! Support PNH Support during February and March 2025 and help bring people affected by PNH […]
