Welcome to PNH Support!
We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging with the stakeholders in our world.
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About Us
PNH Support is a Charitable Incorporated Organisation (CIO) registered with the Charities Commission (number 1161518).
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Resources
Our Resources area has lots of information available and there is no need to register for an account if you don't want to.
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If you would like to make a donation to PNH Support please visit our donation page which can be found here:
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Latest Tweets
- Thrilled to announce our new Better Together For Healthy Bone Marrow partnership to support people affected by rare bone marrow-related conditions over the next three years. Supported by National Lottery Players via @TNLComFund
https://t.co/mf8murrJVg https://t.co/yQcWPOewBp
, - RT @leedshaem: Excited to launch our new PNH website for patients and physicians diagnosing and treating Paroxysmal Nocturnal Haemoglobinuria https://t.co/ijM1hOahYj @leedshaem @KingsCollegeNHS @PNHSupport @PNHScotland,
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