Rare, but not alone.

We are glad you found us!

Join Our PNH Patient Community!

Welcome to PNH Support!

We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging with the stakeholders in our world.

Learn More

What Is Paroxysmal Nocturnal Haemoglobinuria (PNH)

PNH is a rare blood disease where PNH affected blood cells are attacked by the complement part of the body’s immune system.

Find Out More

About Us

PNH Support is a Charitable Incorporated Organisation (CIO) registered with the Charities Commission (number 1161518).

Read More


Our Resources area has lots of information available including videos.

Read More

Make A Donation

If you would like to make a donation to PNH Support please visit our donation page which can be found here:


Follow Us On

Upcoming Events

Recent News