Welcome to PNH Support!
We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging with the stakeholders in our world.
Learn More
About Us
PNH Support is a Charitable Incorporated Organisation (CIO) registered with the Charities Commission (number 1161518).
Read More
Resources
Our Resources area has lots of information available and there is no need to register for an account if you don't want to.
Read MoreMake A Donation
If you would like to make a donation to PNH Support please visit our donation page which can be found here:
Donate
Latest Tweets
- RT @roethal: Just out: Biomarkers and laboratory assessments for monitoring the treatment of patients with paroxysmal nocturnal hemoglobinuria (#PNH): Differences between terminal and proximal complement inhibition: https://t.co/oy6tKaYvI9,
- Raise £200 for PNH Support in February and March and earn yourself a Super Rare t-shirt.
The money you raise will help us support people affected by #PNH
Sign up today!
https://t.co/cXFttN0wph
#superrare2023 #strongertogether #bettertogether #charityfundraiser #raredisease https://t.co/uSz1FNosql
,
Follow Us On