Welcome to PNH Support!
We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging with the stakeholders in our world.
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About Us
PNH Support is a Charitable Incorporated Organisation (CIO) registered with the Charities Commission (number 1161518).
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Resources
Our Resources area has lots of information available and there is no need to register for an account if you don't want to.
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If you would like to make a donation to PNH Support please visit our donation page which can be found here:
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Latest Tweets
- Ways you've got involved in SUPER RARE so far. Thank you to everyone who has joined in and supported people affected by #PNH so far. There is still time left! https://t.co/puE0mLPIAG
#bettertogether #strongertogether #superrare #superrare2023 #charity #fundraising https://t.co/KYlLLB1LsM
, - Join this webinar for #patients on Wed 22 March 4.30pm to 6pm CET on #PNH and #AA and their connection @lichterzellen https://t.co/ACfNolO4Sm,
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