• PNH Support and Connect December Meeting via Zoom – Saturday 11 December

    Join us for a pre- holiday season patient and family Zoom meeting from 10.30am to 12pm. We will have guest speakers including PNH consultants to speak about latest updates and research on PNH. BYO refreshments!   Instructions on using Zoom: https://www.ageuk.org.uk/.../how-to-use-zoom-for-the...

  • Looking after your mental wellbeing – join the AAT’s Wellbeing Wednesdays!

    Maggie's lead psychologist Lesley Howells joins the Aplastic Anaemia Trust (AAT) and their patient community members (including those with PNH) every week, for an interactive and friendly session via Zoom with the focus on mental wellbeing at this very challenging time. Wednesdays from 5pm to 6pm Struggling to cope with the uncertainty? It's all over-whelming? […]

  • East Anglia PNH Patient and Family Zoom meeting – 12 March 2022

    PNH patients and family members are welcome to join the East Anglia Patient and Family Zoom meeting. Date and Time: 10.30am to 12.00pm on Saturday 12th March 2022 Location: Zoom Details: Join PNH patients and family members online for an informal chat. BYO refreshments. All welcome! BYO refreshments.   Please email contact@pnhuk.org for Zoom details.

  • Navigating the new ‘normal’ with no COVID restrictions – 20 April 2022

    How do you feel about returning to 'normal' without COVID restrictions? We are aware that this is a daunting prospect for many of us who have spent many months shielding and who may still be. Join us on Wednesday 20 April 2022, 5.30pm to 6.30pm via Zoom when Philip Alexander, the Lead Psychotherapist from Haemato-oncology at […]