Our Events

This webinar hosted by the Aplastic Anaemia Trust (AAT) is all about dealing with any day to day difficulties people with aplastic anaemia might be struggling with. Whether you're dealing with a sore mouth, managing medication side effects or dealing with infections, or something else entirely - bring your gripes and concerns to get tips […]

Maggie's lead psychologist Lesley Howells joins the Aplastic Anaemia Trust (AAT) and their patient community members (including those with PNH) every week, for an interactive and friendly session via Zoom with the focus on mental wellbeing at this very challenging time. Wednesdays from 5pm to 6pm Struggling to cope with the uncertainty? It's all over-whelming? […]

PNH patients and family members are welcome to join the East Anglia Patient and Family Zoom meeting. Date and Time: 10.30am to 12.00pm on Saturday 12th March 2022 Location: Zoom Details: Join PNH patients and family members online for an informal chat. BYO refreshments. All welcome! BYO refreshments.   Please email contact@pnhuk.org for Zoom details.

How do you feel about returning to 'normal' without COVID restrictions? We are aware that this is a daunting prospect for many of us who have spent many months shielding and who may still be. Join us on Wednesday 20 April 2022, 5.30pm to 6.30pm via Zoom when Philip Alexander, the Lead Psychotherapist from Haemato-oncology at […]

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers crossed that the weather will be good! Please let us know if you plan to attend so that we can confirm numbers to the café. […]