Our Events

Join us for an online (via Zoom) catch up with other PNH patients and family members. We will also present the findings from the latest patient and carer survey.   Email us on contact@pnhuk.org for the Zoom details.

East Anglia Patient and Family Coffee and Cake meeting Date and Time: 10.30 - 12.00 Saturday 4th September 2021 Location: Bury Lane Farm Shop (outside seating) Details: Join PNH patients and family members for an informal chat over coffee and cake. We will be sitting in socially distanced outdoor seating that is not under cover […]

2021 Aplastic Anemia and PNH Research Update from European Haematology Association Congress 2021 (EHA) and American Society of Clinical Oncology (ASCO) by Dr Austin Kulasekararaj on Monday 11 October 2021 from 6pm to 7pm (GMT or 1pm to 2pm EDT). Please resgister here to attend. This webinar focuses on the latest in research presented at […]

Join us for an informal chat with patients and family members from 10.30 to 12pm on Zoom. Please email contact@pnhuk.org for Zoom details.

East Anglia Patient and Family Zoom meeting Date and Time: 10.30 - 12.00 Saturday 4th December 2021 Location: Zoom Meeting Details: Join PNH patients and family members online for an informal chat. BYO refreshments. All welcome!   Instructions on using Zoom: https://www.ageuk.org.uk/.../how-to-use-zoom-for-the...   Email contact@pnhuk.org for the Zoom details.