Our Events

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Date: Saturday 17 May 2025 Time: 10.30am to 12pm Email contact@pnhuk.org for the Zoom details. If you need assistance using Zoom please also get in […]

Themes covered in this webinar will include: Recommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children, help them manage tricky emotions and build overall family resilience. How to use books and other resources Recommendations of social media and websites that your child and teen can access safely. […]

Mindfulness helps us find an extra energizing dimension to our lives, even when we feel overwhelmed, it helps us create clarifying and compassionate pauses for our minds to settle so moment by moment we can choose to be the person that matters to us. During this free 8-week course you will; Learn how to find the clear […]

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. How do I keep a family routine? For more information and to register, click here 

Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is life long, this isn't always easy. People are faced with physical, psychological and practical hurdles that at first feel unsurmountable. This course is designed - with the help of people with bone marrow conditions […]