• How do I keep emotionally healthy?

    Themes in this webinar will include how to keep yourself emotionally healthy so that you can be there for your child and the rest of your family. Sign up here.

  • Mindfulness for Stress Taster Session

    Not sure if a mindfulness-based approach is for you?   Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you. Click here for further details

  • COURSE Managing Stress and Living with Uncertainty with Catarina Baptista

    This course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are six weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT, an evidence-based therapeutic approach, that people say makes immediate sense. The strategies are straightforward […]

  • PNH Patient/Family Online Meeting – Saturday 17 May 2025 – 10.30am to 12pm

    Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Date: Saturday 17 May 2025 Time: 10.30am to 12pm Email contact@pnhuk.org for the Zoom details. If you need assistance using Zoom please also get in […]

  • How to use books and other resources to build family resilience

    Themes covered in this webinar will include: Recommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children, help them manage tricky emotions and build overall family resilience. How to use books and other resources Recommendations of social media and websites that your child and teen can access safely. […]