• Webinar: Self Confidence and Advocacy – 20 February 2025

    This webinar on 20 February 2025 from 12pm to 1pm is designed to help you find the confidence to advocate for yourself or your loved one, and the words when you need them. We will discuss strategies that help you relax in conversations or email interactions, pausing to get across what you wish to say […]

  • Living Well with Aplastic Anaemia – 24th February, 6pm

    Our charity partners The Aplastic Anaemia Trust are hosting a webinar and you are invited to join. This webinar focused on living well with Aplastic Anaemia. This session will offer practical strategies for cultivating resilience and well-being while navigating the emotional and psychological challenges of an Aplastic Anaemia diagnosis. Sign up here.

  • Emotional Wellbeing

    How do I manage times of change in my child’s life? This webinar will help you and your child cope with the practical and emotional demands of life transition and find balance between keeping your child safe and helping them become more independent. https://www.theaat.org.uk/Event/webinar-how-do-i-manage-times-of-change-in-my-childs-life inar-how-do-i-manage-times-of-change-in-my-childs-life

  • East London Epping Forest Super Rare Walk 2025 – 1 March 2025

    On Saturday 1 March 2025, we will be coming together to walk in Epping Forest in support of the Super Rare campaign and PNH Support. This year is the 10 year anniversary of PNH Support which is run voluntarily by patients, for patients!  We'll walk to High Beach in Epping Forest for lunch where you […]

  • East Anglia Patient and Family Meeting – 15 March 2025

    Join PNH patients and family members for an informal chat over coffee and cake. Please note that you will need to pay for your own refreshments. The full address of the venue is Bury Lane Farm Shop café, A10 By Pass, Melbourn, Royston, Herts, SG8 6DF Time: 10.30am to 12pm