Our Events

If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is life-long. Co-created by members of the 6 charities listed below, this online course is designed to help you move beyond diagnosis and treatment, and into […]

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Date: Saturday 9 November 2024 Time: 10.30am to 12pm Please email contact@pnhuk.org for the Zoom details. Please also let us know if you need help […]

Join other PNH patients and family members face-to-face at an informal meeting over coffee.Where: Atrium Cafe (ground floor), National Theatre, London, SE1 9PX. For more information on getting here, please see here.Time: 11am to 12.30pmDate: Saturday 7 December 2024All welcomePlease email contact@pnhuk.org with any quesitons. See less

Join PNH patients and family members for a relaxed Christmas lunch. Cost and venue to be confirmed.

Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you. We can’t always choose what happens to us in life, but we can pause to choose how we wish to respond.  It sounds so simple…  just press […]