Our Events

Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 12th October in Edinburgh, London, Birmingham or Leeds and chat with other people affected by rare conditions affecting the blood. Venues: London -Basement Bar, Drake and […]

A fellow PNH patient and PNH Support UK member is hosting an informal meet up for younger PNH patients (approx 18 to approx 30 years)! Date: Saturday, 26th of October 2024Time: 4-6 pm.Venue: National Theatre Cafe (Ground floor) on the South Bank in London, SE1 9PX - nearest station is Waterloo (train and tube) - […]

If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is life-long. Co-created by members of the 6 charities listed below, this online course is designed to help you move beyond diagnosis and treatment, and into […]

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Date: Saturday 9 November 2024 Time: 10.30am to 12pm Please email contact@pnhuk.org for the Zoom details. Please also let us know if you need help […]

Join other PNH patients and family members face-to-face at an informal meeting over coffee.Where: Atrium Cafe (ground floor), National Theatre, London, SE1 9PX. For more information on getting here, please see here.Time: 11am to 12.30pmDate: Saturday 7 December 2024All welcomePlease email contact@pnhuk.org with any quesitons. See less