Our Events

Family Life Cycles, Times of Transition in the Context of Illness Webinar 27th June 12pm to 1pm Transition points in families, such as children becoming more independent can leave the family in a state of uncertainty and worry, especially when you have to navigate a serious health condition. Life cycle changes are inevitable. Being prepared […]

Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 20th July in Edinburgh, London, Birmingham or Leeds and chat with other people affected by rare conditions affecting the blood. Venues and sign up links: London […]

Is mindfulness for you? Join Psychologist Steven Smith for this taster session of the "Mindfulness for Stress 8 week online course which is coming up in September (details still being finalised) "I feel more in control of what my illness throws at me" - attendee on previous Mindfulness for Stress course.   To register please […]

PNH Support's AGM will be held on Saturday 17 August 2024 at 10am via Zoom. We are required by our constitution to have this meeting at which we present the annual report and accounts which are then submitted to the Charities Commission. Only official members of PNH Support are entitled to attend the AGM. Membership […]

Join PNH patients and family members for an informal chat over coffee and cake. Please note that you will need to pay for your own refreshments. The event will be held at Bury Lane Farm Shop café, A10 By Pass, Melbourn, Royston, Herts, SG8 6DF Time: 10.30am to 12pm