Our Events

Themes in this webinar will include how to keep yourself emotionally healthy so that you can be there for your child and the rest of your family. Sign up here.

This shortened course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are three weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT, an evidence-based therapeutic approach, that people say makes immediate sense. The strategies are […]

Not sure if a mindfulness-based approach is for you?   Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you. Click here for further details

This course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are six weekly sessions each with 60 minutes of psycho-educational content and 30 minutes of meditation/reflective practice. The course uses ACT, an evidence-based therapeutic approach, that people say makes immediate sense. The strategies are straightforward […]

An informal chat hosted by fellow PNH community members. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Please click here to join using Zoom.

Themes covered in this webinar will include: Recommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children, help them manage tricky emotions and build overall family resilience. How to use books and other resources Recommendations of social media and websites that your child and teen can access safely. […]

Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is life long, this isn't always easy. People are faced with physical, psychological and practical hurdles that at first feel unsurmountable. This course is designed - with the help of people with bone marrow conditions […]

During this free 8-week course you will find ways to press the pause button in your mind and quieten the busyness of everyday life. Click here for more details and to book.

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. How do I keep a family routine?