Calendar of Events
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Online PNH Patient and Family Conference – Saturday 18 March 2023
Online PNH Patient and Family Conference – Saturday 18 March 2023
Due to the train strike which has been announced for 18 March 2023 and the limited number of patients able to attend in person, we have taken the decision to move to this an online event only (via Zoom). Our PNH Patient and Family Conference is back co-hosted by PNH Support, PNH Scotland and the PNH National […]
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“Connection between Aplastic Anaemia and PNH” Webinar – 22nd March 2023 – 4.30 pm to 6 pm (GMT)
“Connection between Aplastic Anaemia and PNH” Webinar – 22nd March 2023 – 4.30 pm to 6 pm (GMT)
The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused on PNH represented by Maria Piggin, ePAG of the ERN-EuroBloodNet) and Lichterzellen (focused on AA and PNH and represented by Pascale Olivia Burmester) and Eurordis. It aims to […]
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