Name: Online PNH Patient and Family Conference – Saturday 18 March 2023
Start: 2023-03-18T10:00:00+00:00
End: 2023-03-18T13:00:00+00:00

December 2022
December 17, 2022 @ 10:30 am - 12:00 pm

East Anglia PNH Patient and Family Zoom meeting – Saturday 17 December 2022

Join PNH patients and family members online for an informal chat. All welcome! BYO refreshments. Date and Time: 10.30am to 12.00pm on Saturday 17th December 2022 Location: Zoom. Please email […]
January 2023
January 11, 2023 @ 4:30 pm - 6:00 pm

“Treatment of Aplastic Anaemia” Webinar – 11th January 2023 – 4.30 pm to 6 pm (GMT)

The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused […]

Free
February 2023
February 8, 2023 @ 4:30 pm - 6:00 pm

“Treatment of PNH” Webinar – 8th February 2023 – 4.30 pm to 6 pm (GMT)

The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused […]

Free
February 25, 2023 @ 9:00 am - 5:00 pm

The Together Walk – 25 February 2023

On the 25th February people up and down the country will be walking to raise money for their chosen Super Rare charity. You decide where the walk will be and […]
March 2023
March 18, 2023 @ 10:00 am - 1:00 pm

Online PNH Patient and Family Conference – Saturday 18 March 2023

Due to the train strike which has been announced for 18 March 2023 and the limited number of patients able to attend in person, we have taken the decision to move to […]

Free