Name: Everyday Mindfulness Webinar – 25 January 2024
Start: 2024-01-25T17:00:00+00:00
End: 2024-01-25T18:00:00+00:00

December 2023
December 2, 2023 @ 10:30 am - 12:00 pm

East Anglia Patient and Family Meeting/Christmas Meal – 2 December 2023

The East Anglia PNH support group are having a Christmas lunch at 12.30pm on Saturday 2nd December 2023. It will be at The Tickell Arms, North Road, Whittlesford, Cambridge, CB22 […]
December 2, 2023 @ 11:00 am - 1:00 pm

London Face-to-face Patient & Family Meeting – Saturday 2 December 2023

One of our members (Victoria) has offered to host a London face-to-face patient and family meeting on Saturday 2 December 2023 from 11am at the Hayward Gallery cafe located on […]
December 9, 2023 @ 10:00 am - 11:00 am

Rare Voices Report Findings & Discussion Session – 9 December 2023 – 10am to 11am

The Rare Voices report (launched on 14 November 2023) sets out the findings from the first ever national community survey into rare bone marrow conditions. This survey was a collaborative effort […]
January 2024
January 18, 2024 @ 6:30 pm - 7:30 pm

Benefits Webinar – 18 January 2024

Benefit Advisor, Robert Mandlestam is delivering this webinar to bring you information about the benefits you may be entitled to if you or someone you support has PNH, and advise […]
January 25, 2024 @ 5:00 pm - 6:00 pm

Everyday Mindfulness Webinar – 25 January 2024

Join this webinar with clinical psychologist, Lesley Howells, to learn everyday mindfulness strategies to quieten the busyness of our minds and help us live a more meaningful life despite the […]