Name: London PNH Patient and Family Meeting – Saturday 13 April 2024 (note change of venue)
Start: 2024-04-13T11:00:00+01:00
End: 2024-04-13T12:30:00+01:00

February 2024
February 29, 2024 @ 1:00 pm - 1:45 pm

Update on PNH – Rare Disease Day – Thursday 29 February 2024 -1pm to 1.45pm

Join PNH Support and the PNH National Service for an update on PNH from the PNH National Service to celebrate Rare Disease Day 2024 from 1pm to 1.45pm via Zoom. […]
March 2024
March 9, 2024 @ 10:30 am - 12:00 pm

East Anglia Face-to- Face Patient and Family Meeting – 9 March 2024

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers […]
March 31, 2024 @ 8:00 am - 5:00 pm

Super Rare Campaign 2024 -1 February to 31 March 2024

Welcome to Super Rare! Super Rare is all about being rare, but not alone. Our charities designed this campaign together to help people affected by Super Rare conditions to come […]
April 2024
April 11, 2024 @ 5:00 pm - 6:00 pm

Webinar on Wellbeing for Carers – 11 April – 5pm to 6pm

A challenge faced by many who care for someone living with PNH, is taking time to care for themselves. This webinar offers parents and carers, (who often do not take […]
April 13, 2024 @ 11:00 am - 12:30 pm

London PNH Patient and Family Meeting – Saturday 13 April 2024 (note change of venue)

Join other PNH patients and family members face-to-face at an informal meeting over coffee. Where: Atrium Cafe, National Theatre, London, SE1 9PX (this is very close to the previous venue […]