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Our Events

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  • September 2024
  • Sat 7
    September 7, 2024 @ 10:30 am - 12:00 pm

    East Anglia Patient and Family Meeting – Saturday 7 September

    Join PNH patients and family members for an informal chat over coffee and cake. Please note that you will need to pay for your own refreshments. The event will be […]

  • Tue 10
    September 10, 2024 @ 10:00 am - 12:00 pm

    Mindfulness 8 Week Online Course – starts 10 September 2024

    Mindfulness for Stress Online Course This course is offered as part of a National Lottery funded project called "Better Together" as part of the emotional wellbeing support offering, β€œIt has […]

  • Thu 26
    September 26, 2024 @ 9:00 am - 11:30 am

    Managing Stress and Uncertainty Online 6 Week Course – 26 September 2024

    Managing Stress and Uncertainty Online 6 Week Course This course is made available to our members through the National Lottery funded project called "Better Together" and it is part of […]

  • October 2024
  • Sat 12
    October 12, 2024 @ 2:00 pm - 4:00 pm

    Community Coffee Afternoons – 12 October 2024 – 2pm to 4pm

    Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 12th […]

  • Sat 26
    October 26, 2024 @ 4:00 pm - 6:00 pm

    18 to 30’s PNH Patient Meeting (London) – 26 October 2024

    A fellow PNH patient and PNH Support UK member is hosting an informal meet up for younger PNH patients (approx 18 to approx 30 years)! Date: Saturday, 26th of October […]

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