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Our Events

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  • September 2024
  • Tue 10
    September 10, 2024 @ 10:00 am - 12:00 pm

    Mindfulness 8 Week Online Course – starts 10 September 2024

    Mindfulness for Stress Online Course This course is offered as part of a National Lottery funded project called "Better Together" as part of the emotional wellbeing support offering, β€œIt has […]

  • Thu 26
    September 26, 2024 @ 9:00 am - 11:30 am

    Managing Stress and Uncertainty Online 6 Week Course – 26 September 2024

    Managing Stress and Uncertainty Online 6 Week Course This course is made available to our members through the National Lottery funded project called "Better Together" and it is part of […]

  • October 2024
  • Sat 12
    October 12, 2024 @ 2:00 pm - 4:00 pm

    Community Coffee Afternoons – 12 October 2024 – 2pm to 4pm

    Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 12th […]

  • Sat 26
    October 26, 2024 @ 4:00 pm - 6:00 pm

    18 to 30’s PNH Patient Meeting (London) – 26 October 2024

    A fellow PNH patient and PNH Support UK member is hosting an informal meet up for younger PNH patients (approx 18 to approx 30 years)! Date: Saturday, 26th of October […]

  • November 2024
  • Mon 4
    November 4, 2024 @ 12:00 pm - 1:30 pm

    Moving Forward – Living the Life that Matters to you – Online Course – from 4 November

    If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is […]

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