Name: PNH Patient/Family online meeting – 9 November 2024
Start: 2024-11-09T10:30:00+00:00
End: 2024-11-09T12:00:00+00:00

September 2024
September 26, 2024 @ 9:00 am - 11:30 am

Managing Stress and Uncertainty Online 6 Week Course – 26 September 2024

Managing Stress and Uncertainty Online 6 Week Course This course is made available to our members through the National Lottery funded project called "Better Together" and it is part of […]
October 2024
October 12, 2024 @ 2:00 pm - 4:00 pm

Community Coffee Afternoons – 12 October 2024 – 2pm to 4pm

Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 12th […]
October 26, 2024 @ 4:00 pm - 6:00 pm

18 to 30’s PNH Patient Meeting (London) – 26 October 2024

A fellow PNH patient and PNH Support UK member is hosting an informal meet up for younger PNH patients (approx 18 to approx 30 years)! Date: Saturday, 26th of October […]
November 2024
November 4, 2024 @ 12:00 pm - 1:30 pm

Moving Forward – Living the Life that Matters to you – Online Course – from 4 November

If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is […]
November 9, 2024 @ 10:30 am - 12:00 pm

PNH Patient/Family online meeting – 9 November 2024

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! […]