Name: What about the rest of my family – how do I support them?
Start: 2025-06-12T12:00:00+01:00
End: 2025-06-12T13:00:00+01:00

May 2025
May 13, 2025 @ 8:00 am - June 17, 2025 @ 5:00 pm

COURSE Managing Stress and Living with Uncertainty with Catarina Baptista

This course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are six weekly sessions each with 60 minutes of psycho-educational […]
May 17, 2025 @ 10:30 am - 12:00 pm

PNH Patient/Family Online Meeting – Saturday 17 May 2025 – 10.30am to 12pm

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! […]
May 29, 2025 @ 12:00 pm - 1:00 pm

How to use books and other resources to build family resilience

Themes covered in this webinar will include: Recommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children, help them manage tricky emotions and […]
June 2025
June 4, 2025 @ 8:00 am - July 23, 2025 @ 5:00 pm

COURSE – Mindfulness for Stress

Mindfulness helps us find an extra energizing dimension to our lives, even when we feel overwhelmed, it helps us create clarifying and compassionate pauses for our minds to settle so […]
June 12, 2025 @ 12:00 pm - 1:00 pm

What about the rest of my family – how do I support them?

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. […]