Our Events

A challenge faced by many who care for someone living with PNH, is taking time to care for themselves. This webinar offers parents and carers, (who often do not take the time to care for themselves) tools to support themselves while caring for the people they love.   Register here

Join other PNH patients and family members face-to-face at an informal meeting over coffee. Where: Atrium Cafe, National Theatre, London, SE1 9PX (this is very close to the previous venue at the Hayward Gallery) Time: 11am to 12.30pm Date: Saturday 13 April 2024 All welcome Please email contact@pnhuk.org with any quesitons.

Moving Forward Course: Living the life that matters to you This free online 7 week course is designed to help you move beyond diagnosis and treatment, and into the life that matters to you. Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is […]

Join PNH patients and family members online for an informal chat. Bring your own refreshments! Zoom meeting details: email contact@pnhuk.org

Managing Stress and Uncertainty Course This is a 6 week online evening course starting 3rd June This course will help you learn techniques to help you face the challenges of living with PNH. Topics include understanding stress and uncertainty, learning how to respond to difficult thoughts and emotions, how to use everyday mindfulness, and how […]