Our Events

Members of PNH Support are welcome to join our AGM to be held virtually on Zoom on 18 June 2022 and vote on the annual report and accounts and any other proposed resolutions. Members will also hear about what activities we have undertaken in the past year ending 31 March 2022 and contribute their thoughts on […]

The East Anglia PNH Support patient group is having an informal pub garden lunch on Saturday 2 July at 12pm. This is a chance for patients and their families to get together. Everyone welcome! For more details and to RSVP (by June 27th 2022) please email contact@pnhuk.org.

The European Reference Network, EuroBloodNet has organised a patient webinar: Risk and Course of COVID-19 in AA and/or PNH Patients, including vaccination strategies. The webinar aims to provide highly specialised and cutting-edge knowledge for patients and their families. It is led by experts in the field of AA and PNH, health professionals and patients representatives. The […]

  Sepsis is a serious condition, and can be life-threatening if left untreated. For people with aplastic anaemia and other rare bone marrow failures, the disease itself, and the impact that the treatments have on the immune system mean that people with these conditions are at an increased risk of developing sepsis, and experiencing complications […]

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers crossed that the weather will be good! Please let us know if you plan to attend so that we can confirm numbers to the café […]