Our Events

Now that there are PNH treatments available which are in tablet form (danicopan and iptacopan), join us to hear some advice and tips about taking tablets regularly from a patient as well as the PNH National Service who can answer any questions relating to PNH tablet treatment 10am - 10.45am - presentation 10.45am  to 11.00am […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions.   This course will help you learn techniques to help you face the challenges of living with bone marrow […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions. We can’t always choose what happens to us in life, but we can pause to choose how we wish […]

Join a coffee and cake morning with a variety of stalls including a tombola - cash only! Raising money for PNH Support and the Aplastic Anaemia Trust. Venue: St James' Church, 74D Coventry St, Southam CV47 0EA Time: 10.30am to 1pm https://stjames-southam.co.uk/

This webinar on 20 February 2025 from 12pm to 1pm is designed to help you find the confidence to advocate for yourself or your loved one, and the words when you need them. We will discuss strategies that help you relax in conversations or email interactions, pausing to get across what you wish to say […]