Our Events

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! […]

Themes covered in this webinar will include: Recommendations of books and other resources (e.g. youtube clips) that help you to communicate with your children, help them manage tricky emotions and […]

Mindfulness helps us find an extra energizing dimension to our lives, even when we feel overwhelmed, it helps us create clarifying and compassionate pauses for our minds to settle so […]

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. […]

Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is life long, this isn't always easy. People are faced […]