Our Events

Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you. We can’t always choose what happens to us in life, but we can pause to choose how we wish to respond.  It sounds so simple…  just press […]

Co-created by members of the 6 Better Together charities including PNH Support, this course is designed to help you move beyond diagnosis and treatment, and into the life that matters to you. What does this course involve? Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions. This shortened course will help you learn techniques to help you face the challenges of living with bone marrow […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this webinar is designed to help you to deal with the financial burden of living with a rare condition. Benefits Advisor, Robert Mandlestam will deliver this webinar to bring you information about the benefits you may be […]

This suite of webinars is designed to help parents/carers and grandparents to manage family dilemmas triggered by bone marrow conditions include PNH. Content will cover a variety of areas from finding the right words to talk with your child about their diagnosis, to looking after your own emotional wellbeing,...and much much more! 'How do I […]